dementia

July 23, 2022

A Son’s Eulogy to His Mother

It’s truly an overwhelming task to write a eulogy. One wants to pen something that encapsulates everything about that person. Their strengths, accomplishments, joys and what their presence meant to those around them. The thing that inevitably happens is it is filtered through the writer’s personal prism and one’s own experiences. As a result, some things get lost or not told at all because of limited knowledge. Or even worse it becomes about the author and how that person effected them. But My mother meant so much to so many people that, to do so, would be a great disservice to her memory. For that, more than anything, I don’t want to fail.

This is my 4th draft. Every time I write one I sit there thinking that it just isn’t good enough or that I’ve missed some crucial part of who she was. Like her undying faith in Christ, even at the very end. Or how she exemplified what it was to be a true Christian. My mother was someone who lived with an open heart and an open hand to to help all who crossed her path.

In one I tried so hard to focus on the fact that while she wanted to be a stay at home mom of 7 kids, like the wonderful woman from which she got her name, she got more than 7 instead. She got them in her nieces in nephews. From the moment they came into her sphere they were everything to her. She took them shopping, trips to theme parks, and was an ear to bend when they felt like no one was listening. And I couldn’t bare to leave out how at times, for some, was another parental figure. When life took very unexpected and cruel turns she moved into their homes to help care for them. Family was of the utmost importance to her. And to leave that out would have been a sin.

Then there was the draft where I talked about how her life didn’t turn out the way she had planned as a housewife. I tried focusing on the beauty that comes in the unexpected. Like when my father noticed her from across a bar. The two hadn’t been what the other was looking for but the two turned out to be just what the other needed. They complemented each other in the most beautiful broken symmetry. She wanted to be needed and he needed to be loved. I wanted so much to impart how much they each loved the other. Even when things seemed so rough. They held onto each other ever tighter and merged that brokenness into a whole.

And with each of these drafts I had to mention her dedication to her job. She started working at State Farm in 1964 and stayed there until she was forced into early retirement in 2005. She would have kept working to this day if she had had the opportunity. Her work gave her such a sense of importance and held so much of her identity. Even when words and thoughts were difficult for her to convey she would somehow manage to talk of her 40 years of work.

And then most importantly I could not leave out how much she had wanted me. But that one was difficult for me to write. I never could include that in any of my drafts. I felt like it took the spotlight away from her and onto me. But I know she wouldn’t have been upset at that, because I was what she had wanted. While I may not have turned out entirely as she had planned, her and my father both never missed an opportunity to tell me how much I was wanted. Or to share how much they loved me, how proud they were of my accomplishments and my sense of self.

But try as I may in each version of this eulogy I could not capture who my mother was. She was so much more than just anecdotes or bullet points. She was love made human. Any would have known that the moment they met her. She may have been shy, but it was only because her love was so great she was worried that it would be dismissed.

I will leave you with some of the words that inspired her:

1 Corinthians 13:4-7 says “love is patient, love is kind, it does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self seeking, it is not easily angered, it keeps no records of wrongs. Love does not delight in evil  but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.”

March 25, 2022

The Soundtrack of My Life – 11 – Danny’s Song

My mother was my primary parent. She was the one I identified and spent the most time with. And it’s not like this was because my dad was a bad dad. He was a good role model and really tried. I was just a different character than him. Which is odd because we are very, very similar. I have always been a Chatty Kathy and my dad, because of his anti-psychotics, wasn’t very talkative. On top of that, I think my dad got in his head that since he never had a father he didn’t know how to be one. Whatever the reasons, my mother was the go-to parent.

I think she and I bonded moreso because my mother worked in Costa Mesa and she had found a private Christian pre-school around the corner from her office that I attended until first grade. This was about an hours drive from where we lived, so she and I spent a lot of time in the car. We would chit chat and listen to music. She would sing in her monotone soprano. My mother loved Mama Cass and Anne Murray. These were the ones I remember the most from growing up. (Especially Anne Murray’s Christmas album.) It’s strange to me that now whenever my mom gets upset, caused by her dementia, she is soothed with Patsy Cline. I have tried the other two talented ladies and she shows zero response, which truly saddens me. They are such a huge part of her memory for me.

Memory… I say it as if she’s gone. She’s not dead. She’s still alive, but the person she was doesn’t exist. That’s one of the worst parts of Alzheimer’s. It’s taken the woman I once knew and morphed her into this “bizarro mom.” One where she’s cruel, a liar, and exceedingly stubborn. The lying upsets me the most. She was never like that. Not once in my youth. She notoriously told me that there was no Santa Claus, at six years old, when I asked her point blank if he existed. For the longest time I resented her for that. I had wished she had kept up the charade a little bit longer to prolong my sense of “magic” and “wonder.” As an adult and thinking of the idea of having my own kids, I have immense respect for her. The truth is always the best. And because of her unrelenting ability to be honest, I could always rely on her.

It is such a weird experience grieving for someone who is still alive. Its even harder when you have to handle her affairs and possessions the same way. Even now as I write this I find myself deviating from my thoughts. All of this causes me so much trauma and I fucking hate it. I don’t want any of this. I don’t want to see her change and I don’t want to lose her. Everything that’s happened thus far has stripped her of any dignity. It is because of this that I cannot for the life of me believe in a god.

My mother has always been deeply religious. She grew up in a devout home and spent most of her days at the church. She has lived her life as a good Christian woman, and how does this higher power reward her? Alzheimer’s. It’s a cruel fucking joke. One in which no one but this sadistic deity could find humorous.

It is because of this deeply ingrained brainwashing that, even though she had transcended her prior beliefs, has devolved to where she obsesses over the sin of me being gay. That is the one that truly hurts the most.

I know what everyone will say, “she’s not the same person” or “it’s the disease.” Yeah… I have heard it. But knowing and understanding are two very separate things. Especially when it comes to past trauma.

My mother’s and my closeness ceased to be when I told her I was gay. Well, when I told her I was “bisexual” as if that could/would soften the blow that she wasn’t going to get grandchildren. She had made her beliefs about homosexuality very clear growing up. I even distinctly remember her saying she was a “proud homophobe.” After I had outed myself she didn’t speak to me for a solid month. Then any communication after her hiatus was short and cold.

As time went on and after my husband and I lived with my parents for a year, while we got ready to buy a house, I think she saw how normal we were. We weren’t these sinful sexual deviants. We were just us. That’s it.

My mother was the one to sign our marriage license (I think I put her on the spot and she couldn’t decline or else look like a dick) and she even introduced my husband as her son-in-law. All this progress, all this change, and every ounce of it lost because of her disease.

The last couple weeks have been the worst. She is now seeing people who are not there, talking to them, and living in a constant state of fear because these delusions are calling her ugly and/or saying they’re going to harm me. She breaks down into tears because she doesn’t want to see me hurt. I hate all of this for her. This isn’t fair.

She is now on hospice care and while most always believe that the death knell is growing, this probably isn’t the case. There was a moment this last weekend where I thought she had died in my car, so I pulled over and dialed for help. When the ambulance came out and checked her vitals this bitch was in top notch health.

The only way she’s going to leave this earth is because her mind forgot how to breathe.

Now I sit and wait for the call that she’s passed.

September 22, 2021

In search of a new home

This morning we began the search for an assisted living home for my mother. It started off with a super pricey place. For a non-shared room in memory care it’s $6k a month. That includes around the clock care, meals, and utilities. So that’s nice. We can swing it but any money she wanted to leave to me won’t exist. And I personally do not care.

While it’s super pricey I think I may end up going with this place because it’s close to where I live and that price is locked in permanently. Even if her level of care changes the monthly cost won’t change.

Our next stop will be at a group home on the other side of town. Care starts at around $3,200 but can go up depending on her level of attention. More than likely it’s going to be more than that because this woman will not stop pissing herself. It is constant and non-stop. Yesterday alone we blew through four adult diapers.

I have been blissfully unaware of her level of need up until recently. My mother’s prior “caretaker” would only tell me “gently” instead of coming right out saying, “hey, dude, she’s bad.” Then again, maybe she did and I just refused to see. It sucks how I will ignore obvious signs because I don’t want to see how much she has and is failing.

Body wise, my mother is a champ. The whole reason she even came to stay with us, while we look for a more permanent spot, is that she keeps falling. But goddamn if that bitch isn’t built like a linebacker. She had three falls and no damage. I walk by something, brush it too hard, and I bruise like a banana. Evidently I got more of my fathers genes. Maybe that means I won’t be at risk for dementia. Doubt it though.

I still think I should see other facilities to get a good idea of what’s best for her, but in the end I think I’ll choose the first one. Just cause I liked it and it’s available. I need to get her settled immediately. She refuses to live with me and I refuse to live with her. And my anger at seeing her decline is very real and uncontrollable. The moment she starts putting on the water works in her attempt to return to her house I lose it. Rationally I know it’s because I’m at odds with giving her want she wants, versus what she NEEDS. What she needs is not fun or easy to accomplish. And in the end, she’s miserable either way.

February 17, 2020

Family? I don’t know them.

It’s sad to me how much my mother believes in the fantasy of “family.” She is of the school that “blood is thicker than water.” And at one time in her life it was true, but it has since diluted. For me it never existed, because I saw through my families bullshit and lies.

Lies may be a harsh word. I should just say empty promises. The words these people speak mean nothing to them, but unfortunately so much to my mother. She believes them, because at her core she would never say something she didn’t mean.

One of my cousin’s (I forget whom) had a problem with my mother because if you invited her to any event she will attend. That thought angers me for two very specific reasons: 1) why wouldn’t you want her there? and 2) is it such a bad thing to be able to depend on someone, no matter what?

When she was firing on all cylinders, she was the most giving woman to ever have existed. (She still is, by the way, she just lacks the capacity to do as much as she wants.) She would go absolutely out of her way if you asked her to. The only problem is she (subconsciously) expects that in return, and it’s not going to happen.

This morning my mother ruminated on how she had taken care of both my aunts when they had cancer and my father through his many ailments. Both of my aunts would eventually succumb to their illnesses (and my father on an unrelated injury tied to one of his many issues.) Before they had passed, she was there every step of the way. She would make the 2 hr drive down to see my aunts as often as she could without complaint because it was just what family did for one another.

Rewind many years and my mother was there for my cousin’s as they were growing up. I am in a weird spot in my family line, because all of my first cousin’s were having children when I was born. So I grew up with my second cousins. During the years before she met my father, she was the bad ass aunt who took her nieces and nephews to every southern california theme park, took them shopping, did whatever she could to give them a good childhood. She was the one they ran to when they “ran away from home.”

Returning to reality… Here we are as her mind is disintegrating and where are they? Where is this family that is supposed to come and help? They don’t even have to do anything, just visit. Sit there and reminisce. Chat. But they are nowhere. And in the end, for me, that’s fine. It further cements the notion that blood means fuckall. Yeah, you share a genetic code, but that doesn’t mean they give a shit about you.

The thing that does upset me with their absence, is that these ungrateful pieces of shit are hurting her. She languishes in isolation and wonders why no one visits her. It’s heartbreaking to watch and one I can’t answer for her, without sounding angry or bitter.

My mother loves to wax poetic that “your family loves you.” (Speaking to me, about me.) No, they don’t. They really don’t. They tolerate me or “accept” my existence. But love is being there for someone, no matter the cost. Love is not empty words spoken to make you look good, but carry no weight behind them.