The Soundtrack of My Life – 47 – August

Music never ceases to astound me. The way it can take a time and place and hold it hostage in it’s melody is pure magic. This is one of those songs that the moment I hear it I am transported to the months of July through September, after the album “Folklore” came out. I was working my way, track by track, obsessing over each one until every song was burned into my brain. This is still my all-time favorite Taylor album by a long shot. It has all of the best lyrics and the music is so entrancing. It’s almost as if she was weaving a sort of fairy-tale.

“August” in particular transports me to a naive innocence in my life; the prologue to Charlie’s diagnosis.

Much like how this album came unexpectedly into my life, Tony did the same into our lives. Little did we know that he would become a permanent fixture. He was a bright spot in the chaos of the covid pandemic. He broke up the monotony we had become accustomed. Because of him, Charlie started playing Magic the Gathering with me. Tony introduced all of us into the Commander format. Granted it was a format I was unfamiliar with at the time, but it would immediately become one I would forever prefer over standard.

The music recalls the joy of hanging out and laughing in our hot tub, drinking liquor heavy beverages, and talking about all of the dumb shit in our lives. After a long soak we would retire to the living room where we would play “beat saber” on Tony’s playstation or watch a movie. Then, still drunk, we’d all climb into bed and fall asleep. Charlie nestled safely in between Tony and I; a little glimpse into the future.

It was the calm before the building storm. Accompanied by a lingering anxiety that can’t be placed.

Charlie was officially diagnosed at the end of September, the day before he was meant to have a face lift in Tijuana. The entire drive down, both of us were filled with this immense anxiety that we could not quite place. For me, it ate away at my gut. I could just feel something bad waited for me. I thought it was from leaving him in Mexico for a week, by himself. I never could have imagined that it would be his diagnosis.

We had driven down the day before his scheduled procedure, crossed over the border on foot, and got picked up by the driver for the clinic for his pre-op consultation. (It should be noted that to make the anxiety of meeting this stranger even more harrowing Charlie’s foot caught on the sidewalk and he landed chest first into the pavement. I could have unraveled at the seams.) After we paid the $1,000 deposit we went back to the hotel to unwind. It was there, while scrolling his e-mails and watching a television program in English, between Spanish commercials, that he got a new message in his patient portal.

Both of us broke down into tears researching his new ALS reality. Ultimately he would lose all interest in having a face lift (“what is the point,” he had said) and, counting the $1K deposit as a loss, we both just wanted to go back home. Not even 12 hours later we were driving back, overwhelmed with the truth.

It’s weird how that day feels like eons ago while simultaneously feeling as if it was just yesterday. So much happened in between then and now, as life tends to do, that it all feels like a blur. I sometimes wonder if I want to remember these moments, especially if all they do is bring me down.

But there was a brief moment before all of that, where it was surreal bliss.

I wish I could go back to that time, before the e-mail. I would savor every second of the “not knowing” and “not worrying.” I would treasure finally getting my husband to play a trading card game with me, after 15 years together. I would just enjoy the ignorance for as long as I could.

Not There Yet – 2 – Brutal Recap

If this project has done anything so far it has shown me that I am nowhere ready to process my grief. I set out on this journey with the intention to do so and instead I neglected and ran from it even more than I had before. Which… is to be expected, I guess. There is quite a lot to work through in the wake of the hurricane that became my life.

During the last few days it has become clear to me that the phrase “they went mad with grief” or “their grief drove them crazy” isn’t just a euphemism. It is a very real thing.

Now, I haven’t looked into the actual science of it, but from my own experience it is a real occurrence. I have felt it. I feel it every other day. My brain goes off into these bizarre tangents where I “feel” like I’ve lived an experience before. Or that I have had some prophetic vision of this exact moment in the past; aka “de ja vu.” Some would just get that fleeting feeling and move on, but I have developed this weird obsession where I think it is tied to my impending death. As if I am next on the list, and I have somehow sent messages from the future to my past/present self to prepare for this inevitable end.

Crazy, right?

I try to keep myself grounded, but it is so hard not to get pulled into the orbit of this insanity. Which is why I have come to the conclusion that this is just my grief and my inaction in resolving it. At least, I hope.

To give a little more context, for those that haven’t followed along, all of this chaos began in 2019. Prior to the world literally falling apart because of COVID, my personal world started it’s free fall. It began in the waiting room of my mother’s neurologist. My mother mentioned in passing that my father had been falling. He had fallen 3 times the previous weekend. I very nearly joked about getting him a life alert, and in hindsight I should have. Shortly after this almost random exchange, my mother received the results of her second brain scan. The nurse practitioner turned to me and whispered that my mother had had a significant loss in brain mass within a years time, and was likely due to Alzheimer’s.

In the parking lot outside of the doctor’s office, I asked my parents if they understood what the doctor had told us. Neither of them did. Most likely because the medical “professional” didn’t tell them, just me. (It would later become a point of contention between me and my mother when her disease got worse. Those were always fun conversations.)

This all occurred on a Monday, and then on the following Thursday, I awoke to find a missed phone call from my father. The only problem was, the voice on the message was a stranger’s informing me that my father had been taken to the hospital.

For whatever fucking reason, I took my sweet fucking time responding. I got dressed, went to my inspection, informed my boss about the phone call, and then casually drove to my parents house. I pulled up to find my parent’s front door wide open, as my mother was waiting for me to get there. We got in the car, drove to the hospital, blissfully unaware of the cataclysmic shift that awaited us beyond the double doors of the ICU.

My father was brain dead.

What I have gathered from my mother’s many immensely morbid and graphic retelling and from the details from that stranger (who I would come to know quite well as Jessica) it all started when my father woke up to pee in the early morning hours. While in the bathroom he lost his balance and hit his head on the counter. He called for my mother, and as his head was aggressively filling with blood, he gurgled out “get help.” To which my mother’s response was to run outside, somewhere around 6 in the morning, and proceed to shout “help.” Somewhere in that time my mother went in and moved my dad from the bathroom into the bedroom, where she tried to get him into the bed.

It was never explicitly stated, but I have a hunch that in my mother’s dementia ridden brain and her moving of my father is where all of this met it’s ultimate conclusion.

I’m still uncertain, but from what I understand, my mother returned to the exterior to once again call for help, ignoring the fucking phone in her house that could have easily called 911. Outside she encountered someone who told her to do just that, however she had no idea how to do that or simply forgot. Who knows and quite frankly, doesn’t matter.

In that time frame she encountered the stranger Jessica. This woman, who my parents had never spoken with before, was their next door neighbor. She just so happened to be putting her son on the bus to school when she was confronted with my panicked mother. Here is where some sanity came into the situation and she did all of the normal things one does in a fucking crisis.

After piecing together context clues from my father’s cell phone, she called to tell me what had happened.

It is still so strange to me, even now, that prior to all of this she had never spoken with my parents or I. Yet after this day, she would become a huge presence in my family’s life. It was destiny, I guess.

By the time we finally got back to see my father, he had already had a chunk of his skull removed and the loss of whatever was left of his brain activity. He was literally being kept alive by machines. I remember the doctor telling me all of this with irritation, like he was annoyed that we weren’t there when he arrived at the hospital. (Was this my fucking fault?)

I remember going in to see him, unmoved by the limp form of my father in the hospital bed, and seeing my mother reach up and try to touch his fucking head of all things. I had to rip her arm back, as the piece of paper, directly above him, said to not touch it as literally just behind the thin, fleshy wall was his fucking brain.

It was in this moment where I was thrust into a world of care and authority I did not want, nor was I remotely prepared for. I was left to make all of the decisions about my father’s care and end of life options. Something no one in my fucking family had ever had the guts to discuss. Which makes sense. Talking about one’s death isn’t really a thrilling topic of discussion. However, since this entire debacle I have lost all discomfort about death and have discussed it at length with the ones who will be responsible for those decisions upon my demise.

This all happened in the end of June, just a week from the 4th of July. The leftover excitement of the summer season, remaining from my school days, no longer applied. This would forever be known as “the time of death.” As it would be accompanied by my mother’s and my husband’s subsequent passing.

With my father gone and being the only child of he and my mother’s marriage, I was left to care for my mother. Something that only became increasingly difficult as the grief of my father’s passing aggressively gnawed away at the weaker parts of her softening brain. She could barely speak. Whatever was imparted to me was in broken phrases or terms. It was like a second language. One my husband seemed to speak better than I did. Or she just pretended. That was something I wasn’t ever prepared for, the lying. My mother seemed to revert to a child and for someone who once couldn’t bear lying to me about Santa Clause at five years old, had zero issue speaking false truths now.

Another thing I wasn’t prepared for was when my mother refused to see me one time because she was adamant that I was there to kill her. That was a fun one. Her crazed red eyes glaring at me with distrust. I tried to guard myself from the possibility of her forgetting who I was, but not for this. I would have preferred her forgetting me. That never happened though.

Within 3 years of her diagnosis, she was merely a ghost of her former self. She passed in 2022, almost to the day of my father. Her body forgot how to swallow.

What’s weird to me now, is I am second guessing that year. Grief rampaged through my memory like a pack of elephants through the jungle. Now most things are half memories, if even that. Sometimes I have to ask my loved ones if that actually happened or if I am misremembering. (By the way, I was wrong. The date above is correct now, but it wasn’t originally. I was getting it mixed up with my husband.)

All of this became even more exhausting as a little over a year later of the traumatic “dad” event, my husband would be diagnosed with a terminal illness that would strip him of every ounce of muscle in his body. He would become wheelchair bound and I would once again be thrust into a role I never ever dreamed I would play.

I have joked so many times before, but it genuinely feels like I was cursed by a witch. The speed and the veracity of all that occurred leaves me paralyzed. And I’m left to ask, when is it my turn? If all of this could happen to the people I loved so suddenly, why not me?

And I understand that I am mortal and my time will come. With all of this, though, it feels like it is more immediate. As if it is this weekend. Or the next. Or the following month. Maybe even after I post this blog.

The one thing I cannot grasp is where to even begin or HOW to process all of this. (Is this even what is causing this overwhelming psychosis? Maybe I am just legitimately crazy.)

Everyday I just want to fucking scream. I am so angry at life. Sure there are moments of beauty but it feels broken, unreal. Like I’m living a strangers life and not my own. And it is that thought that send me spiraling, once again, into the land of crazy. So with that I shall bid adieu to you, dear reader. It is time for bed.

Not There Yet – 1 – Love’s Limits

I have written out the story of how Charlie and I met so many times that I could probably lay them over each other and have them be near identical. It’s one of my favorites. Which is why I tell it so much. It sounds trite but sometimes it just feels fated. Like it was meant to happen. I’m sure most people do that to romantic stories, or we wouldn’t have a term coined when “romanticizing” them.

Charlie coming into my life was an accident. He messaged me, thinking I was someone else, and because I was young and dumb I pretended to be that friend until the joke lost it’s power. Then when I told him who I really was I saved his username into my AOL buddy list and would subsequently talk to him every time he came online.

It’s funny to think of the context of his first ever words to me, “Yeah, Diego and I are still together.” In my mind I use the same cadence in an imaginary conversation he may have had with someone else about me. “Yeah, Josh and I are still together.” The truth of the matter is I did not make our “romantic accident” easy to maintain.

The last time I did a project of this magnitude (writing weekly about my life to a collection of songs) I wound up having an epiphany that finally put all of my trauma into perspective and I was able to finally move on. Too bad it took me 18 years to step past it. That’s the biggest issue with me. I tend to procrastinate everything, especially when it comes to emotional healing. Because of that, I wound up ruining what could have been a perfect relationship.

That probably isn’t the best way to put it. It almost sounds like it wasn’t wonderful and it was. Despite all of the broken and rough bits. In reality, that was our entire time together. It existed when it shouldn’t have, and stayed there even with all of the terrible things that happened.

So, how did I ruin it? Why was it so bad? Me, of course. Not dealing with my emotional trauma in a healthy way I ended up cheating on my husband more times than I can count. We broke up twice, but never for very long or even at all. We would continue to talk and work through our problems and with grace, that I did not deserve, he would forgive me and take me back. Why? I still have no idea. I didn’t deserve it. There were three big events where he caught me cheating in ways that led to some of the worst moments of my life. And when I was caught, I was honest. I had already lied so much in the effort, that to continue doing so, when the facts were very clear, was ridiculous to me. Sometimes I think that’s why most people keep me around, because I’m honest and earnest.

My cynical side says it was because ‘he couldn’t do any better’ (he had really bad self esteem) but that still, in some fucked up way, praises myself. As if I’m some kind of fucking prize. When I say that, that’s not my intention. What I mean is that I was a mildly attractive person with a kind heart, and the gay world is filled with cruel assholes who will not hesitate in messaging you on some silly app to say “Your ugly. Kill yourself.” Which is something my husband literally had messaged to him. (The typo kept to maintain authenticity.)

So, why did he stay with me? I’m going to go with that he loved me. That man showed it to me every day and because I was so broken, with such a shitty self image, I was unwilling to accept that fact. I told myself every lie that I didn’t deserve it, so I tried to break it. I tested it’s boundaries every time, and what I found is that love is breakable but easily repaired. It’s magnetic. At the same time, it isn’t. The magnetism comes from our persistence and unwillingness to give up. When I look back at all of his examples, that is how love is meant to look: unyielding, unrelenting, persistent. It’s communication and honesty. Grace! Of which we had copious amounts of because of my constant state of pushing the limits.

In the end our marriage morphed into something completely new and totally our own. To most of society it isn’t what it’s supposed to be: a man and a woman. Hell we couldn’t even bother with monogamy. Our relationship flourished the most when we stopped confining ourselves into the boundaries of typical stereotypes. Genuinely. Our final test was when we dropped our taught perspective of monogamy and embraced polyamory.

The Soundtrack of My Life – 46 – A Minor Incident

Since spotify got off their bullshit to stop running ads for ICE, I have made a happy return to the streaming platform, even though it still uses AI for it’s suggestions and “wrap-ups.” And I thought “why not do another ‘soundtrack post’ with one of the most depressing fucking songs?” So, here it is.

Back when Charlie and I started dating, I got this album for myself from Best Buy (our favorite store at the time, since one had opened up in town) with a Christmas gift card. For whatever reason, this soundtrack makes me think of Christmas time. Maybe it’s because that was when I first saw it or because, of the two main characters, one of them lived on the wealth of their father’s Christmas song.

Also, I have this weird habit that when I fall into “depressive episodes” I will watch the same film on repeat. This was the film, at that time, that I had in a loop.

The story telling/writing in it is phenomenal and has some of my favorite actors in it: Rachel Weisz and Toni Collette. (Rachel Weisz is one of the 3 women who could make my forsake my homosexual life for a hetero one.) The musical score and the songs elevate all of this to another level for me. I had to have the soundtrack as my own.

As I do, I became hyper-fixated on 3 songs on the album. The one of above being one of them. It’s the song written for the scene when Marcus’s mom tries to end her life. The lyrics in it address the loss of words one experiences when faced with someone who attempted and, luckily, failed in their effort. So, what that had to do with Charlie potentially taking a job in Iraq at the time is beyond me.

The logic of teenagers is obtuse at best. They’re melodramatic and find resonance in things that don’t really pertain to certain scenarios. As like this one.

Charlie was an over the road trucker at the time, but he wasn’t making as much money as he wanted. He was always looking out for the next, better opportunity to further his ultimate goal: to be filthy rich like his dad.

As the made up war in Iraq/Afghanistan was killing innocent civilians and rebels fighting the imperial invaders over their oil, a job opportunity was presented to him by his father. His father worked for Oxy at the time. The salary for driving an oil tanker over there paid enormously, but it also was very high risk. (Obviously.)

He toyed with the idea because he wanted the money but terrified because he didn’t want this job to end his life before it even began. I wish I could remember how long he entertained the idea. From my memory it felt like weeks but I’m sure it was just A WEEK if not DAYS. Regardless, I told him, at the time, that I would wait for him when he came back. He told me that would be dumb, but I really wanted to live that “war wife” fantasy.

So in my obsession of the above song and him potentially going off to work in a war-torn country, I dedicated and played it for him, expecting some big “oh, wow, that meant so much” from him. Which shows how little I knew of my future husband at the time. I’m surprised I didn’t hear his eye-balls rolling from across town.

What I find odd about this song is it actually pertains eerily closer to how our relationship ended than it ever did at the start. Even as I listen to it now it was almost like I was casting some magical spell over our relationship and cursing us to the fates we found.

“There’s nothing I can say to try to make you feel okay. And nothing you could do, to stop me feeling the way I do… And if the chance should happen that I never see you again, just remember that I’ll always love you.”

I feel that in my soul, as trite as it sounds. The song echoes of the helplessness one feels watching someone struggle with something you cannot change. Then there is an undercurrent of understanding, that it is out of your hands but regardless the singer will be there. Through all of it.

As it pertains to us, it almost feels like each of us takes a turn singing one verse to the other. And in those verses that I feel Charlie would sing, they bring me comfort, even though the song breaks my heart. It also highly improbable that he would have ever openly admitted those words to me, even if he meant them.