Not There Yet – 2 – Brutal Recap

If this project has done anything so far it has shown me that I am nowhere ready to process my grief. I set out on this journey with the intention to do so and instead I neglected and ran from it even more than I had before. Which… is to be expected, I guess. There is quite a lot to work through in the wake of the hurricane that became my life.

During the last few days it has become clear to me that the phrase “they went mad with grief” or “their grief drove them crazy” isn’t just a euphemism. It is a very real thing.

Now, I haven’t looked into the actual science of it, but from my own experience it is a real occurrence. I have felt it. I feel it every other day. My brain goes off into these bizarre tangents where I “feel” like I’ve lived an experience before. Or that I have had some prophetic vision of this exact moment in the past; aka “de ja vu.” Some would just get that fleeting feeling and move on, but I have developed this weird obsession where I think it is tied to my impending death. As if I am next on the list, and I have somehow sent messages from the future to my past/present self to prepare for this inevitable end.

Crazy, right?

I try to keep myself grounded, but it is so hard not to get pulled into the orbit of this insanity. Which is why I have come to the conclusion that this is just my grief and my inaction in resolving it. At least, I hope.

To give a little more context, for those that haven’t followed along, all of this chaos began in 2019. Prior to the world literally falling apart because of COVID, my personal world started it’s free fall. It began in the waiting room of my mother’s neurologist. My mother mentioned in passing that my father had been falling. He had fallen 3 times the previous weekend. I very nearly joked about getting him a life alert, and in hindsight I should have. Shortly after this almost random exchange, my mother received the results of her second brain scan. The nurse practitioner turned to me and whispered that my mother had had a significant loss in brain mass within a years time, and was likely due to Alzheimer’s.

In the parking lot outside of the doctor’s office, I asked my parents if they understood what the doctor had told us. Neither of them did. Most likely because the medical “professional” didn’t tell them, just me. (It would later become a point of contention between me and my mother when her disease got worse. Those were always fun conversations.)

This all occurred on a Monday, and then on the following Thursday, I awoke to find a missed phone call from my father. The only problem was, the voice on the message was a stranger’s informing me that my father had been taken to the hospital.

For whatever fucking reason, I took my sweet fucking time responding. I got dressed, went to my inspection, informed my boss about the phone call, and then casually drove to my parents house. I pulled up to find my parent’s front door wide open, as my mother was waiting for me to get there. We got in the car, drove to the hospital, blissfully unaware of the cataclysmic shift that awaited us beyond the double doors of the ICU.

My father was brain dead.

What I have gathered from my mother’s many immensely morbid and graphic retelling and from the details from that stranger (who I would come to know quite well as Jessica) it all started when my father woke up to pee in the early morning hours. While in the bathroom he lost his balance and hit his head on the counter. He called for my mother, and as his head was aggressively filling with blood, he gurgled out “get help.” To which my mother’s response was to run outside, somewhere around 6 in the morning, and proceed to shout “help.” Somewhere in that time my mother went in and moved my dad from the bathroom into the bedroom, where she tried to get him into the bed.

It was never explicitly stated, but I have a hunch that in my mother’s dementia ridden brain and her moving of my father is where all of this met it’s ultimate conclusion.

I’m still uncertain, but from what I understand, my mother returned to the exterior to once again call for help, ignoring the fucking phone in her house that could have easily called 911. Outside she encountered someone who told her to do just that, however she had no idea how to do that or simply forgot. Who knows and quite frankly, doesn’t matter.

In that time frame she encountered the stranger Jessica. This woman, who my parents had never spoken with before, was their next door neighbor. She just so happened to be putting her son on the bus to school when she was confronted with my panicked mother. Here is where some sanity came into the situation and she did all of the normal things one does in a fucking crisis.

After piecing together context clues from my father’s cell phone, she called to tell me what had happened.

It is still so strange to me, even now, that prior to all of this she had never spoken with my parents or I. Yet after this day, she would become a huge presence in my family’s life. It was destiny, I guess.

By the time we finally got back to see my father, he had already had a chunk of his skull removed and the loss of whatever was left of his brain activity. He was literally being kept alive by machines. I remember the doctor telling me all of this with irritation, like he was annoyed that we weren’t there when he arrived at the hospital. (Was this my fucking fault?)

I remember going in to see him, unmoved by the limp form of my father in the hospital bed, and seeing my mother reach up and try to touch his fucking head of all things. I had to rip her arm back, as the piece of paper, directly above him, said to not touch it as literally just behind the thin, fleshy wall was his fucking brain.

It was in this moment where I was thrust into a world of care and authority I did not want, nor was I remotely prepared for. I was left to make all of the decisions about my father’s care and end of life options. Something no one in my fucking family had ever had the guts to discuss. Which makes sense. Talking about one’s death isn’t really a thrilling topic of discussion. However, since this entire debacle I have lost all discomfort about death and have discussed it at length with the ones who will be responsible for those decisions upon my demise.

This all happened in the end of June, just a week from the 4th of July. The leftover excitement of the summer season, remaining from my school days, no longer applied. This would forever be known as “the time of death.” As it would be accompanied by my mother’s and my husband’s subsequent passing.

With my father gone and being the only child of he and my mother’s marriage, I was left to care for my mother. Something that only became increasingly difficult as the grief of my father’s passing aggressively gnawed away at the weaker parts of her softening brain. She could barely speak. Whatever was imparted to me was in broken phrases or terms. It was like a second language. One my husband seemed to speak better than I did. Or she just pretended. That was something I wasn’t ever prepared for, the lying. My mother seemed to revert to a child and for someone who once couldn’t bear lying to me about Santa Clause at five years old, had zero issue speaking false truths now.

Another thing I wasn’t prepared for was when my mother refused to see me one time because she was adamant that I was there to kill her. That was a fun one. Her crazed red eyes glaring at me with distrust. I tried to guard myself from the possibility of her forgetting who I was, but not for this. I would have preferred her forgetting me. That never happened though.

Within 3 years of her diagnosis, she was merely a ghost of her former self. She passed in 2022, almost to the day of my father. Her body forgot how to swallow.

What’s weird to me now, is I am second guessing that year. Grief rampaged through my memory like a pack of elephants through the jungle. Now most things are half memories, if even that. Sometimes I have to ask my loved ones if that actually happened or if I am misremembering. (By the way, I was wrong. The date above is correct now, but it wasn’t originally. I was getting it mixed up with my husband.)

All of this became even more exhausting as a little over a year later of the traumatic “dad” event, my husband would be diagnosed with a terminal illness that would strip him of every ounce of muscle in his body. He would become wheelchair bound and I would once again be thrust into a role I never ever dreamed I would play.

I have joked so many times before, but it genuinely feels like I was cursed by a witch. The speed and the veracity of all that occurred leaves me paralyzed. And I’m left to ask, when is it my turn? If all of this could happen to the people I loved so suddenly, why not me?

And I understand that I am mortal and my time will come. With all of this, though, it feels like it is more immediate. As if it is this weekend. Or the next. Or the following month. Maybe even after I post this blog.

The one thing I cannot grasp is where to even begin or HOW to process all of this. (Is this even what is causing this overwhelming psychosis? Maybe I am just legitimately crazy.)

Everyday I just want to fucking scream. I am so angry at life. Sure there are moments of beauty but it feels broken, unreal. Like I’m living a strangers life and not my own. And it is that thought that send me spiraling, once again, into the land of crazy. So with that I shall bid adieu to you, dear reader. It is time for bed.

A Plan and a Promise

It is genuinely concerning how I let no-named “influencers” influence the choices in my life. The other day I saw a prominent TikToker called “knitting cult lady” (who herself has escaped a cult and written a book about it) talk about how someone can process trauma by writing it out. She expanded by quoting scientific studies, of which she doesn’t give proof of, to back up a claim that if one were to just put their trauma in a matter-of-fact manner, with no emphasis on processing the emotions, that our brains will do it for us without investing the work. Of course I took her words as gold and scientifically sound, even though she could just be talking out of her ass.

Regardless of the truth, it did feed my own desire to write again. It occurred to me a few days ago that I have had zero interest or want to put my thoughts into words. I pondered for a moment wondering if it was just me “moving on” of that want or desire, or if it was due to the fact that my anti-depressants aren’t working. Part of me is leaning into the second theory (I cannot stop consuming sugary food, which is a big tell).

I know that I have not processed my family’s passings. I like to pretend that I have, but whenever I think I’m doing well it gets turned on it’s head. The tears come and I seek out some “substance” to dull the unspoken/unrecognized agony.

With that, I have decided to embark on a year long journey, similar to the one I did with “The Soundtrack of My Life.” Except this time, there will be no music and it will all be documenting my life with my late husband. (God it feels weird saying that.) Each week I will type out a new entry in our story. With the point to keep it brief. There is no sense getting caught up in the prose or narrative thread.

That is what happened the last time I tried to do something similar.

I previously tried writing last November, but I got so caught up in details and got bored of my own voice that I stopped the effort. Maybe I just wasn’t ready.

Since the second year anniversary has come and gone, it should be enough time for me to write it all out, keep it strictly to the details and not wax poetic.

The “Soundtrack” project actually helped me process some lingering trauma I never even realized was there, until I wrote it out. Which is why when this woman came across my video feed it was like I was talking to myself through a separate entity. It brought the focus back to the project and what it would mean. And after all of that nonsense, I just enjoy writing. It is clear to me that I have gotten rusty, because even now I am struggling to get that motor running. I need to get it going again. With it I can use it as an escape from this hellscape, however momentary it might be.

Always in Motion the Future Is

This is the first time I’ve ever put a title at the very start. Usually I will write out whatever it is that sits at the back of my mind and go from there. However this is a quote that is, one, very nerdy; but two, very true.

Before Charlie passed away he asked me if I was going to marry Josh when he was gone. At the time I was so hesitant to tell him yes. Instead I opted for some vague and uncertain, but always pointing to yes. I didn’t want him to think that our marriage wasn’t the one that meant everything to me or that he was replaceable. “Well, this husband is gone. Time to plug in a new one.”

My response was, Probably, why do you ask?

He responded first with that the cat was curled up next to him, which he loved. And genuine proof of his ADHD.

Then he said, just curious. I want you to be happy. If he can do that, I support it.

I should have responded with, “he does.” but instead we went off on a tangent about the cat. He made a comment about taking her with him. Which he didn’t do, but he did take both of the pups with him, shortly after his passing. They couldn’t live without him either, I guess.

In 10 days we are going to get married. We already bought our rings, which we couldn’t afford, but you want them to be monumental. I bought a ring that will sit on top of Charlie’s. Josh is always supportive of my love/life with him and what we had… I don’t know how I got so lucky twice. Genuinely.

At times I feel so utterly, unbelievably lucky, and others I feel so cursed. It’s the nature of life I suppose and what you choose to focus on. I’d rather look at how the horrible things in my life have literally led to the best parts.

My plan for our eventual nuptials was to have a proposal on his half birthday, May 2, and then get married some time in the fall or whenever after. I joked and thought that getting married on November 3rd, between our two birthdays, would have been kind of fun. But that also would have been entirely too close to Charlie’s and my anniversary, November 1st. (He wanted to get married on a day he would be able to remember.)

However, even with the plan, life has a different way of working out as the last five years would absolutely attest. So we are pushing it up.

On March 26th there will officially be two Joshua Hensleys in the world.

Crazy Chronicles – Episode 2

The actions that I took yesterday gave me a sense of pride. I knew what I had to do, which was to reach out to my therapist, and instead of my usual, “I know, I should,” I did. Evidently how I worded my email to him concerned him in such a way that within five minutes he called me.

“What’s going on, Josh?” He asked.

I began to explain the entire weekend and how I had felt. For someone who I feel, at times, just keeps me as a patient because I’m relatively low maintenance he was on-it when it came to my crisis. We talked on the phone for about five minutes. He listened to me and then responded by reminding me of all that I have gone through in the past few years. As a result, I am still in the process of grieving my husbands death. He explained that grief can manifest as anxiety or panic attacks because it’s our bodies response to the lack of the person’s presence.

“This person should be here.”

“It’s like they were completely erased from your life.”

The reminder really struck a chord in me and once I understood, and accepted this answer, it all made sense. I look back on the past few times I’ve had these episodes and each one was either directly or in a roundabout way, connected to his memory.

The first time was when we were driving to visit our Papa Bill in Palm Springs and I lamented, to myself, on the drive that I really missed Charlie. He was the chatty Cathy who could strike up and maintain a conversation about headlamps. He could make it so engaging that it would spark another topic and then another, like a firecracker. Without him there that day, the car ride was near silent. We had music playing but there was no discourse. To add to the vacuum of sound, it was also the first road trip with the three of us where charlie wasn’t included. The weight of his absence so very, very obvious. It made my heart hurt.

In that event I think the grief was too much for me to comprehend and it manifested as a “heart attack,” because a large part of my heart was no longer there.

The last two were not so much his absence but the meaning in it. He wouldn’t have approved of my BFs and my trip to SLO (it was a “sexy” trip) and then this past weekend the three of us were hanging out in the living room, without him, talking about how the brother-husband had a date with a new man.

Conceptually I understand that life goes on but… The heart doesn’t know or even really care. It wants what it wants. Mine wants my Charlie back. I am utterly lost without him. He successfully held this crazy together and now I am left to do it by myself.

To top everything else off, the past couple months I have been plotting and planning my proposal to the BF.

Charlie always joked, before he was ever diagnosed with ALS by the way, that when he died I would: 1) bring my boyfriend to his funeral, which I did do, but he brought his; and 2) that I would be remarried soon after he was gone.

I hated those jests. It felt like he was discounting my feelings for him or not believing that I absolutely I loved him. “Accusing me” of “moving on” felt like I was trying to erase him or, at the very worst, that I never cared for him. If there ever was a doubt in my heart that I “didn’t really love him,” caring for as he lost the ability to do literally anything and my subsequent immense longing has wiped awat any doubt. That man was my everything. Some may scoff, “how can that be, you had an open relationship? You had a boyfriend!”

To that I say, love is not precise. There is no single picture of what it should, could or does look. I believe that two heterosexual men can love another more than a spouse and not have it sexual in any sense of the word. Sex does not equal love, and vice versa. Combining them as one thing is minimizing the immense potential of the two. If they both work out, then you’ve got lightning in a bottle. Cherish it. However sometimes our hearts and minds are compatible, like the person was made specifically for you, but in the bedroom you both want entirely different things. Trying to meet in the middle is one way to build a strong bond, but sometimes there are things that are just impossible to bridge because of expectations. There are moments where even when your partner tries, there is a mental block reminding you “they’re not into this” and that kills potential in the attempt. I have found from my own experience at least, and even with my husband.

We want our partners to be happy and if that’s not doing that well… what do you do? In my opinion, suffering in silence is not an option. It’s what led me to cheating over and over again.

Instead of us breaking up, because at the core of our relationship was love and trust (I don’t know how it survived with my infidelity), we decided to open our marriage. After which, I believe, with every fiber of my being, it brought us closer together. It was all based on honesty and communication. We had a set of rules that guided our relationship and dictated what was and wasn’t okay. It wasn’t some lawless wild west where we could just do whatever the fuck we wanted.

I could wax poetic about non-monogamy for hours, but that isn’t the point of this post.

Today I am doing so much better. I reached out to a professional and I listened to his expert advice. My word choice is deliberate. Most people hear what they’re told, but do they listen? Do they comprehend how it applies to them, in that moment? I got lucky because I am someone who spends hours ruminating in my mind. The bitch WILL NOT shut up.

Even with all of that progress, however, I still think I’m dying, but aren’t we all?