February 6, 2024

I don’t have the energy to give this a title

I don’t understand, why am I drawn to social media? I will spend hours perusing the countless posts of the horrific bullshit that is going on across the globe. No matter how upsetting all of it is I cannot look away. It’s maddening. Especially so because I cannot do one fucking thing to change it. Not a one. Me posting some funny (misspelled) quip or reposting someone else’s well written one will not do one goddamn thing. Maybe, MAYBE change someone’s mind, but other than that… not a thing.

Yet I scroll on.

Why did the world decide to take a massive dump? I feel especially screwed because during a pandemic people refused to treat as such, my mother was deteriorating mentally with Alzheimer’s and my husband was diagnosed with ALS. At that time people were getting checks mailed to their house from the government to supplement their income, due to lack of work, whereas I was making the most money I have ever made in my entire life. Now after all the free cash, and a drastic uptick of interest rates I am lucky if I get more than 5 jobs a month. Where’s my handouts?

Now with the final death coming up the walkway toward me, the world has to go and get itself into war. Like… can’t I catch one fucking break? Jesus.

I just want to fucking scream. Most of the time I’m doing it in my head behind a forced smile.

The thing that makes me the most angry is it’s just gonna get fucking worse. It’ll never let up. Never once in my lifetime. Maybe my niece’s and nephew’s time.

January 29, 2024

A tale of two poisons

It has become abundantly clear, as of late, that I really don’t know how to handle my emotions. At all. The moment something stressful occurs I do 1 of 2 things. I either stuff my face with some kind of sugary goodness or I buy something. Sometimes I’ll do both if the rush of one wasn’t enough to pale the emotional anguish.

On some level I have always known this about myself. When I was a kid I would sit down in front of the tv with a family size bag of chips and finish them in one sitting. I was a tremendously unhappy kid. I could not take any kind of rejection because I have always been my most authentic self. Well… apart from the years where I was a careless liar who would spew the most ridiculous whoppers. But I’m getting off track.

It’s been that way when I was cheating and holding in secrets, it’s been that way when I moved in with my parents like a failure, and it’s been that way when I worked in a highly negative environment with the most toxic and terrible coworkers.

But I was poor then, so food was the easiest fix to attain. Thankfully.

Now I have “adult money” and an inability to tell myself no when the mood strikes.

Example… there was this retired Viking ship LEGO set that I wanted to accompany the “Viking village” I purchased. It is a 3 in 1 and I told myself that I shouldn’t buy it. It was Amazon for $140. I could buy newer, cooler sets for that amount of cash. So I ignored the purchase.

Then I was doing something for my husband and the panic/stress set in and I bought it without a moments hesitation. It should be here tomorrow, hopefully.

One of the things both my husband and brother-husband are concerned about is my turning into a hoarder. I freely and willingly admit that I have a tendency to pack away useless crap. Oh yes. Through the years after accepting this character flaw I’ve gotten better about it. But now it seems to be growing.

The boys are concerned because most, if not all of the stories the hoarders on the show tell, are that they never got over a traumatic episode whether it be a death, disappearance, rape etc. These people started to accumulate shit to fill an emotional void. I’m doing that. Right now. I’m buying up Lego and trading cards like they’re going out of business.

I’m just going crazy. Legitimately, certified coocoo. And I can’t escape it.

January 26, 2024

A New Member of the “Lollipop” Guild

I entered into the Midnight Madness short story competition and have had a week to concoct a short story. Have I started? Not really, other than planning and plotting in my head. So, I’m finally sitting down to bang out a rough draft. In the past I have done it day of the deadline so at least this is some progress. However, to get the engine purring before I dive in, I thought I would write a blog. It feels like so much and nothing at all has happened.

My husband has definitely progressed. But I think it’s a subtle change that isn’t as obvious to it’s broader implications. For some reason he has become OBSESSED with his mouth. He has explained to us that it feels like he has a tapeworm that is trying to escape through his mouth. Like this parasite is reaching up through his esophagus to escape. We called the hospice nurse and she assured him that “that” isn’t possible. (However I was told a story from my grandmother that her mother had a tape worm and after a bite of horse radish it crawled out… but I guess that was a ‘tall tale.’)

The nurse’s suggestion was to provide us with these little “lollipop” sponges to moisten his mouth and try to break up that dried phlegm at the back of his throat. Now every 20 minutes I’m dipping in these little sponges and swabbing his gums and tongue. This isn’t that much of an ask, except for me it comes with past trauma and lots of emotional baggage.

When my mom had lost the ability to swallow and was heading toward her end, the hospice nurse provided these exact “lollipop sponges” to moisten her mouth and lips. Seeing these again has brought up the feelings attached to them. I shared my feelings with him and he assured me that they are unrelated. This is not a sign of things to come. At least not in the immediate future. Yet… aren’t they?

With ALS he will eventually lose the ability to speak, breathe and swallow on his own. It’s just a natural progression of the disease. The muscles involved in these bodily functions atrophy and he is left kept alive by machines. He has already shared that he doesn’t want that, and I do not blame him. Neither would I. So… we have entered into a new waiting game, in my mind, of whether this is a sign of that or not.

I hate all of this. I hate this for me and for him. He feels so much guilt for how much he is relying on and asking of Tony and I. And I feel bad because in the face of this new task I am overwhelmed with it’s overall meaning. So I respond by being short and cold when he asks. It appears that I’m angry at him for making the requests, when in fact I’m mad that this is happening and don’t properly know how to process this change.

It’s further made worse because I generally don’t know how to process my feelings. I never learned healthy coping mechanisms or how to unpack my feelings in a way that I could handle them without flying off the handle. My go to response for most things is anger/rage. I think it makes me appear “tough.” Yet that couldn’t be further from the truth.

January 11, 2024

Reflections in an Imaginary Basin

Long ago, in an age of innocence, I was a huge Harry Potter fan. The books called to me from the end of the Target endcap and once I got past the absurdity of the boy on a broomstick, I fell deeply in love. Of course this was before the true nature of the writer came out, and before I ever valued the lives of my community more than the belief that something (I could never understand) was weird. Yet you live long enough and you see your heroes turn into villains. It’s the curse of humanity. We are deeply flawed creatures, and unless we take efforts to grow and change we will slowly turn into twisted creatures.

I’m not saying that Rowling is a twisted creature, she is just not doing anything to stop it from happening. I guess that is the curse with riches. It corrupts.

There is a particular moment in my favorite book (The Half-blood Prince) of the seven volume series that has stuck with me. I never understood why until recently. I wanted to share it but… I feel like it does two things. One, that it is self serving and makes me sound like a martyr. Two, it makes me look like a monster. There is no space between for me. It is either one or the other.

When I shared it with the boyfriend he told me that it is normal when caring for someone. It is a lot and it weighs on you. There is only so much we can handle as caretakers.

The scene in particular is a chat that Dumbledore has with Harry prior to entering the cave to retrieve Voldemort’s locket. The headmaster tells his bright eyed student that no matter what he says, do not stop. Keep going. It’s cryptic and unnerving until we see it play out, and it lives up to that expectation. It’s when Harry feeds the poisoned concoction from the basin to Dumbledore. He begs and pleads with him to stop, but Harry pushes on because he made a promise that he would keep going.

That is how I feel. Everyday. I am pleading for this all to stop, but I made a promise with myself to keep going. I must. There is no stopping, because this is for the greater good.

While the rest of the Harry Potter saga is derivative, it does have it’s moments that truly shine. This, for me, is one of them. It (as the kids say) lives in my head rent free. Especially the disappointment in realizing that the entire endeavor was for naught. Dumbledore suffered for nothing. He died, for a decoy. Well… he died to fulfill the promise Snape made to help Draco kill him…. but… semantics.

All of this is summed up in the loss of childhood innocence. The series, the loss of a hero, and the death of my spouse. Everything ends at one point or another. Just like that basin of poison. It was only momentary… but you keep drinking “the poison” because you have to.