The Soundtrack of My Life – 29 – Always Gold

I do not care what anyone says, Pandora has the best selection of music. The algorithm works to the advantage of the listener, creating a playlist that is at least in the same vein of what you’re interested in. Without it I wouldn’t have found as many artists. Radical Face being one of them. Where is this even played? How would I have heard it, without a friend recommending them? I am not one to actively seek out new artists. I’ve been burned too many times in the past that I refuse to do it.

The only real memory this song has for me is helping to drown out the shrill, irritating voice of the one super opinionated JW woman at my previous place of employ. Listening to music was the only way I could cope with that horrible job. Other than it being a saving grace it has no other meaning. The only reason I use it here now is because of the message sort of applies to my topic.

The song is about a brother’s love and how no matter what paths were chosen they would always be there for the other. It’s a beautiful sentiment and the voice/music is super haunting. In a good way, though.

These past few weeks I have been on an Alaskan cruise with my polycule. And everywhere we went, we were asked by countless women, “Are you brothers?” I lacked any energy to explain the intricacies of our relationship, so instead I would simply answer, “no.” The brother-husband would lay it out there without context or explanation because he likes the shock value. (I do too, but we were trapped on a boat with these people.)

I know they meant nothing in their inquiry, but it opens up a whole other path of questioning. One that for me is centered around the way in which we care for my husband. It is here where I feel these queries are born. Since, it would only be because of our “bond of blood or brotherhood” would we nurture our wheelchair-bound companion. Why must we be brother’s to dote and care for a loved one? It’s truly odd.

It was ALWAYS women who asked. I think because they’ve only seen the disengaged, disinterested demeanor most men carry for anyone. Somewhere in their lives, men are forced into a life of apathetic detachment. Which is horrible and also confusing. Were they not raised by their mothers? Do they continue this irrational tradition of making boys “men?” That’s one point I cannot get over.

Men need permission to be affectionate, compassionate, and caretakers. Whenever they do show any sign of vulnerability they are immediately marked as “gay.” By both hetero and homosexual strangers. And because our society, in general, is anti-gay, men will do whatever to distance themselves from being seen as anything else. It’s super dumb. And that also applies for those in the gay community. The myth of “masculinity” is prized above all else.

Anyway… Fuck masculinity. Fuck the binary. I am me. I will allow myself to be, feel, think however the fuck I want. What someone else perceives you to be should not dictate your happiness or your ability to care for someone. If you love them, do it. Regardless of blood.

The next time someone asks us if we’re brothers I’m just going to say: “Yeah, brothers who fuck.”

A Month in Review

It’s weird to think that my dad has been dead for a month now. It simultaneously feels like it’s been forever and then again no time at all. I miss him but at the same time I miss what he was for my mother, a caretaker.

My mother has Alzheimer’s. An aggressive bout of it, it would appear. Everyday it feels like she’s getting worse. Then again it could be because I am seeing all of it, in all of its cruel glory without filters.

I never truly understood how bad it was. My father would just tell me that it was getting worse but never elaborated to how or why he felt that way. Now I do.

For those keeping tally, I have bathed my mother 3 times and cleaned up her “accidents” just as much. She has so far accused my husband of bringing a woman home and fucking her in our bed and has also told us (on a separate occasion) that the power chords in her room were calling her ugly. However she also has accurately figured out who Josh is and what role he plays in my life. To that I say “clever girl” in the voice of Robert Muldoon from Jurassic Park, right before he’s devoured by a velociraptor.

My mother is adamant that she won’t be living with my husband and I. She wants to go home and me “live my life” and she “live hers.” I haven’t even broached the subject of assisted living by the advice of a woman who’s sole job is to place elders into care. That’s about the only thing I’ve listened to thus far.

I’m trying to please too many people in this situation when I have to think about what is ultimately the best choice of action. What that is I don’t know. Well, that’s a lie. A care facility would be best but when I look at the monthly cost, coupled with how much money she has and how little I make to supplement that it seems like a fools errand. Especially given that we don’t know how long she will live.

Getting old in America is genuinely a cruel joke. You work your whole life, scrimping and saving to leave your children something after you go, and instead it is bled dry by corporations who make money off of the infirm. All for the idea of safety, care, and security.

I am someone who couldn’t care less about what my mother could leave me. Her on the other hand is deeply concerned. She repeatedly tells me she wants me to have something upon her passing. Looking to the horizon that will be one other thing she won’t get.

But it’s for the best, considering her disease has already claimed one life and it wasn’t even hers.