Grief Fragments

I really don’t know what to write. I know I should. I want to. But for the life of me, I am such a bundle of emotions, I can barely string together a coherent, pensive thought. Instead they’re fragments of grief.

It’s almost been a week since I found out my husband is dying/going to die. And it has been quite the emotional roller-coaster. The moments where I glide along an even track are my favorites, because it’s then that I can readjust and get my bearings. Although even then, I will barely have had any time and something will plunge me into a spiral. And it can honestly be anything. (Songs, I’ve discovered, are the worst.)

We have since spoken with the doctors handling his diagnosis and they seemed optimistic, in regards to treatment. (Or at least I took it as optimistic, even though the diagnosis is terminal.) The primary doctor or attending (whatever it is) was pretty certain he has ALS. I guess they went with motor neurone disease because it’s too soon to make a concrete diagnosis, and MND is kind of an umbrella, with other bizarre things beneath.

In regards to time… Well, even he said from the start that’s a loaded question. He said from his experience with the disease that it averages 4-5 years. Which, is good, and shitty. It all depends on the person and each one is different. The primary physician suggested doing clinical trials for treatments, and my husband definitely wants to (because he wants this to have meant something.) The resident also suggested a secondary treatment that would involve my husband getting shots three times a week, and would include a permanent port in his body for injection. I thought the hubs would say no to that but he was on-board. The doctor said this “infusion” typically adds about 1/3 to the time.

For whatever reason, I have a number of years stuck in my head. I only think of it because between the two of us, there is usually a 12 or 7 between us. And with the husband it’s always 7. However, I understand that’s just a grieving spouse clinging to hope. I should know, more than anyone at this point, that nothing is ever certain.

Acceptance and Other Tales

Self-acceptance is something I was mildly blessed with early on. I say it that way because there is still much of myself I dislike or haven’t come around to realizing is just who I am. Yet even with that, I still have come a long way to have confidence. I think that is why I have to remind myself that not everyone has gone through the same or probably ever will.

When I was younger I fought the idea of being gay tooth and nail. I was raised in a deeply religious home, went to Christian school and being gay was never an option open to me. The idea of even telling anyone I had those thoughts was a flat out no. I grappled with my sexuality. I prayed, in tears, that God would take away those feelings. I didn’t want to be a sinner or disowned from my family. I wanted to have the “right” life with a wife and kids. Yet, there was no denying that I was not attracted to girls. The idea of being with them ended when it came to sex. I love women and could have a deeply emotional relationship but that was where it would end. I wouldn’t be in for the deepest part of commitment and whomever I would have been with would deserve better.

I very nearly lived a “straight” life. I had girlfriends, I did the song and dance that came with it and if it hadn’t been for one fateful night I probably would have driven down that hetero-road and dealt with the consequences that came with it.

The first person I ever told I was “bi” was my friend Becky on her birthday, which is only a week away. I had been so entranced with this boy named Sergio at her birthday that I felt compelled to tell her in the hopes maybe he too… As it turned out he was and he ended up being my first boyfriend and first heartbreak. I fell hard and fast for this kid. When he ended it with me, I was devastated. It took months before I was able to move on because I wasn’t ready. I am someone that is so desperate for love that I dive in without even thinking. I envision this life of bliss and when everything turns out to be the opposite I am hard-pressed to understand that the dream I had was only that. It’s probably a sickness.

The first few days after I told Becky I was so furious with myself. “Why did I do that,” I kept thinking. It wasn’t true. I wasn’t gay! But I was still in denial. It wasn’t until I met with that boy, for our first “date,” that something in me turned and I never wanted to go back to pretending. Being with him came easy. Sergio, or “the s” as I called him to hide his gender and identity, was my first kiss. Real kiss. He was my first boyfriend. And my first infatuation.

I thank him for making me who I am. I learned so much from the short experience. For one, don’t get involved with someone young because they (unlike my freak self) haven’t made peace with their sexual preference. After Sergio I only went for older guys because I couldn’t deal with the heartbreak I had felt when he went running. I know now that I came on too strong and he just wasn’t ready. As a result, I learned to shield myself from people. Well, at first. The moment I get a compliment or am shown just the slightest amount of attention all walls come tumbling down. I am just that desperate for love and attention.

I’m almost certain I’ve shared this story on here (or other blogs) countless times. I probably even wrote it in one of my columns for the Renegade Rip. I almost never told Becky my truth. I went to her bowling party and played my role as a straight dude well, and at the end of the night went to leave. However when I got to my car the battery was dead. I called my parents to help me out and while we waited for AAA I went back inside and whispered to her the words I never thought I would say. It’s strange to look at tiny moments as mundane as a dead car battery altering the entire course of one’s life, but it did for me.

My hope is that others can find the same peace I found when I finally just accepted me for me. My natural follow-up is that it is a hard journey, but in all honesty it wasn’t for me. I have lead the most charmed life. The only real moment that was rough was my mother’s acceptance. She was very much not on-board at the start, but since then she is someone else entirely. Sure there is bigotry, but I rather be at peace with myself than fighting a battle I would never win. Denying your truth is a tortured life, full of secrets and lies that only grow as time goes on.

P.S. May I suggest what spurred this blog post, it’s a song by Brandon Stansell “Hometown.”

Australian Same-Sex Marriage

So, an article came across my yahoo.com newsfeed (yeah, I know, the eye roll is appropriate.) It told of two gay men in Australia that were against gay marriage. Immediately I was enraged for a couple reasons, mostly because I know that this “news” station is using these two men to justify the other side’s opinion that it should be illegal. However, I’m getting ahead of myself. Let’s step back.

When gay marriage was being endlessly debated in the states I read and shared every article on Facebook. I joined a couple groups and would try and get all of my friends and family on board. One of my cousins, an out lesbian, never joined any of my groups and refused joining the fight. While she never outright said it, I knew she was against gay marriage. I was incensed. I couldn’t understand why. All I could conclude is that she’s 1) a nut-job and 2) a republican, which I assume is just to be “different.”

One time when I was taking a basic English class to “get back to the roots of writing” (god, I’m an idiot) I was put into a group that had this one little shit in it that was full of opinions. I have since seen him working at a movie theatre as a ticket taker, so, looks like he’s doing well for himself.   Anyway, I took this class during the heated ‘Prop 8’ in California and the topic was on everyone’s minds. This particular person informed the group that he had gay friends that didn’t want gay marriage because, and I fucking quote, “they didn’t want to get married.” Um… Excuse me? If this was even remotely true (and god I hope it isn’t) all I could think was that this is the most selfish reason to not want legislation. You don’t want to get married? Much like our hetero counterparts they don’t HAVE to get married. They can stay single until the day they die drunk and alone, to be eaten by their hundreds of cats. But to vote against your own community because YOU don’t want to get married is some bull shit.

This article (which I will post a link at the bottom) brings back that rage. How can these fuck faces sit there and tell all the others in their community they don’t believe in marriage because they don’t see themselves getting married. Are you fucking high on poppers? Maybe if you take the bottle away from your nostril for a couple days you might gain some clarity. This is not just for you, it’s for everyone. To sit there and purposefully harm someone else THAT DOES WANT TO GET MARRIED is beyond cruel.

That’s the thing about politics that confuses the hell out of me. People pass this legislation because it either will or won’t affect THEIRSELF. Fuck the other people that have hopes and dreams.

I truly hope this “couple”… I mean, can we call them that? They’re not… I mean… They’re men. That word is reserved for heterosexual couples that aren’t living in sin. They shouldn’t even be allowed to share a bed. They’re not married. They’re just friends… I hope these “friends” are ostracized by their community. Fuck having they’re “own opinion.” “Everyone should be treated with respect.” No they fucking don’t. You’re not showing any courtesy to those who want to get married so why should these “friends” be given any?

Here is the match: https://au.news.yahoo.com/a/36960765/same-sex-marriage-wollongong-gay-couple-oppose-marriage-push/

 

Nothing to add, merely to relay

As much as I don’t want this to turn into a political blog it will inevitably trail that way sometimes. Especially because people insist on making laws or having ideas for change that will or won’t hurt a community I am a part of.

It’s funny because before the whole election I had little to no interest in politics. What was happening beyond my bubble was far beyond me. Which is what I feel so many Americans felt. We were disengaged because we had always trusted the system to work for itself and it was in that complacency that things began to go haywire.

The only law that mattered to me and my life was gay marriage. I wanted the knowledge that I could one day wed the person I wanted to be with. When that finally happened, for me, everything else became moot. And, again, I was complacent.

As it turns out this was the week to attack the rights of anyone under the rainbow banner of LGBTQ.

Let us begin with tRump’s pick for the head scientist of the department of agriculture. He is a gentleman that believes that homosexuality is a choice and that we are on the same level as pedophiles. It’s lucky that he is headed for the department of ag because he appears to be useless anywhere else. What terrifies me is that he is not the only one that thinks this way, and I imagine that most of those that inevitably will fill the remaining administration will probably have similar ideas on the topic.

For a brief moment I understand where they’re coming from with the logic “it’s a choice.” Yes. To some degree it is in fact a choice as everything we do in our life is a chosen by us. However, by choosing to conform to the straight life because it’s the “right way” would cause harm to the person doing the choosing and those around him. In addition, who the HELL would want to knowingly choose a life of pain and heart ache if they had ANY want/desire/attraction to the opposite sex. It would stand to reason that one would just choose the “normal” way and be done with the whole issue. But they think it’s for sexual pleasure, and yes it is, but what if I told a hetero man that he could never have sex with a woman again, but only men because it was right? They would say absolutely not because they’re not hardwired that way.

When I get to the pedophile shit I just cringe because his statement is accusing me of doing just that, and there is nothing I despise and loath more than a person that sexually abuses a child. As having been abused myself (not by an adult but by an older neighbor boy) I find it insulting. I am too an extreme that if I knew someone had harmed one of my loved ones as a child I would seek vengeance however it may be. I’m like a rabid dog when it comes to protecting the innocent, so to lump me in with someone that abuses a human, that is still struggling to understand what it is to be human, is infuriating.

It just shows me that most of those that fly the Christian moniker tend to be the least empathetic people, especially when an R is attached to their political affiliation.

Now… This last issue is not one that I am super strong about because I am not transgendered. I don’t know anyone personally, so that fight is not one that I feel I am in. However, I know what it’s like to be ostracized by society because of who I am, so I know when the bully on the playground picks the next victim I have to stand up to defeat him. Trump going after trans in the military is pointless and just dumb. They want to pretend that it’s about keeping a cohesive unit or that the other soldiers are in danger, but again it is because they lack any semblance of a heart. If they tried to look at it from the other person’s side they would see that their fears don’t even exist. Most trans people are more terrified of being outed because it could result in an even harder life.

Every morning when I wake I am terrified what the day will hold. It’s stressful. It is honestly wearing me down to the point that I have finally just accepted that the world is doomed. The life we lived is no more and now the powers that be have an agenda that benefits only them and no one else. That is why I have become very nihilistic. I genuinely hope that they fuck our shit up. I want them to ruin the country so that it will be on their watch, under their command, and all their fault. Unfortunately they will not see it that way and will spin it to be someone else’s doing because no one in politics can just own their bull shit.

I dislike writing about politics because I am not as well versed on the topic as I should be, nor do I have anything new to add to the constant chatter that buzzes around these issues. I wish I did have more to add/say/reveal but ultimately I have nothing. I am absolutely helpless. Knowing that my communities way of life is always in the hands of those who are not a part of, nor care for is soul crushing. It is in this powerlessness that I come to two very different metaphorical roads in my mind. Both are scary. One leads to me accepting myself as a victim under those that seek to oppress me; or I seek to be the one with the power, fueled by my rage. The second is more enticing because it gives me the illusion that some sort of war is being won, but I know that road leads to radicalization and inevitably ends up hurting the overall cause. Yet, on the other path, I have to take what is given to me with a smile and keep moving on, all the while have my spirit torn apart.