Were I With You…

Today my phone actually connected to my car without me having to take any extra steps. It turned on my ipod and put all my entire library on shuffle. For the most part the songs were skippable with clips of stand-up comedy sprinkled in between. But when this song came on I stopped and started to ugly cry.

My husband loved Chris Stapleton in the last few years of his life. When his newest album at the time came out, he sent me this song as a “message” from him to me. It was the best way he could express his emotions because he was not someone who could say what he felt. Instead, he did it through songs. Which is why, when he would forget the songs he “dedicated” to me it broke my heart a little. I know he meant nothing by it, it was just his bad memory. Plus, I have a tendency to remember the most innocuous bullshit.

I like to pretend that this isn’t just some random happenstance, but that its my husband speaking to me from the beyond. Most who have lost someone do this. It’s so hard to let go to the people who were so impactful on your existence. Even when you had 4 years to get used to the idea.

After the election I could really, really use my husband’s voice to talk me through it and let me know that everything will be okay. I wish I could snuggle up next to him, rest my head on his chest and listen to his heartbeat. He’d put an arm around my back and hook it onto my shoulder. He wasn’t one for physical intimacy, so I had to grab it when and where I could.

His heart was so loud in my ear. I liked to think it was because he had a larger than normal one, in the cutesy way and not in the “this is a medical condition” kind. It would be slightly tarnished because after he passed, that was how I knew he was gone. I placed my ear to his chest and I couldn’t hear it anymore. He was gone. He had left after I began to panic that he was in pain and rushed to the kitchen, with Tony, to get the medication to keep him relaxed.

I was so worried during the first Trump disaster than gay marriage would be repealed and I would lose our marriage. Luckily it didn’t happen. Instead he was diagnosed with a terminal illness and he was physically taken from me. Maybe having our marriage nullified would have been better… But he would have been diagnosed regardless. So I guess I should take the “win.”

It’s weird, how this song absolutely applies to me now. I’m entering into my 40th year of life. And there isn’t any pot of gold. Just a lake of shit and death.

The night of the election I genuinely thought about taking an entire bottle of pills. It was quickly dismissed by two things. One, was the promise I made to my husband before he died. He wanted me to keep living and have lots of adventures. With my word given… I would be more devastated by breaking it than dying. Two, I won’t give these fuckers the satisfaction. I’d rather stick around and annoy them. Kick them in the nuts if I get the chance. Maybe punch a couple of the nazis if I get the chance.

Only time will tell.

I just wish I had my best friend with me. The “Josh Whisperer.” He knew what to say and do to soothe the unruly beast that lives within my thoughts.

The Soundtrack of My Life – 43- Traveller/When I’m With You

Today is my husband’s birthday. As one does with a anniversary of life you tend to reflect back on everything. It’s almost like climbing yet another peak and looking back to see where you’ve come from. For me, I’m more excited that I get to spend one more with him.

For the occasion I have added songs by Chris Stapleton. He’s been Charlie’s favorite singer/songwriters the last few years. For Christmas last year (or maybe for his birthday) I bought him tickets to see him in Denver, Colorado. The idea was to turn the whole thing into a fun road trip that would ultimately end with the concert. That, however, was ruined by my mother losing her ability to swallow and Chris Stapleton getting Covid prior to the show date. The journey ended up being a bust even though it was fun until it wasn’t.

My plan for this holiday I intend on buying him tickets, again, to see Chris Stapleton, but the bitch of the situation is all the ADA seats are sold out. Really? There are THAT MANY handicap people in the world? Odd… I don’t see very many people in wheelchairs. (That is an ignorant statement, by the way.) Stranger enough is that they all decided to convene at this one concert in Arizona. Sorry, I’m turning this into a rant and I don’t mean it to. The way people abuse the ADA options is mindbogglingly infuriating.

I chose Chris for the above reason (obvs) but also because these songs always make me think of my husband. At one time, before we knew his ALS diagnosis, we would frequent a bar downtown. I would inevitably commandeer the jukebox, playing all the mellow shit I wanted. I am not one to wait, and I will pay top dollar not to listen to some dumb song someone think “slaps” and kill my vibe. Every time I would play “Tennessee Whiskey” first and then, a couple others for variety, “Traveller.” When it would come on the speakers, my husband would gasp and look at me.

“Did you put this on?” he would ask.

“Of course, Punkin.”

The song below… I included it because it was one he “dedicated” to me. It makes me cry every time I listen to it. I would have put it at the top but, it hits entirely too hard. It’s also extremely depressing. Birthdays are meant to be fun! However, I would be remiss to not take this opportunity to share that one with you as well. The sentiment behind it is beautiful.

I really hate that I don’t remember the first time we got to celebrate his birthday together. I’m sure I did something shmaltzy as a gift and then ended up having sex, because aren’t I really the gift? I know I didn’t take him out to eat because I was a jobless, high school senior at the time.

I have tried every year since to make my gift better than the one before. Primarily because he always does so much for mine. However, I’m running out of options at this point. Next year I’m going to have to find a cure for ALS.

What makes everything even more difficult is my husband’s distaste for his own birthday. I think it stems from the stress he felt for his mother, doing it for him, alone, in his youth. It goes the same for Christmas. This time of year is always so stressful for him. He’s not one to celebrate. It wasn’t until he owned his own construction company and was doing well, financially, that he got into the Christmas spirit.

I had wanted to do another big birthday event like we had last year, but he wasn’t up for it. As he progresses he has found that people tend to spend more time talking and paying attention to him. He doesn’t like it. He’s never liked it. But with the fact that his speech has gotten to a point where people have a hard time understanding him it makes it even worse.

Tonight will be a small affair. Just dinner from one of his favorite places with our little polycule and his family.

I just wish I could think of something better than cookies and candies for his gift…