married

February 11, 2025

Ramblings of a Mad Man

Today is one of those days where I really, really, REALLY miss my husband. More than anything. If I could, I would give everything up just to be able to talk to him for one second; to hear his deep voice tell me: “…everything is going to be alright, dear.”

Last night I apparently watched enough TikTok that I went into a downward mental spiral. The thoughts racing through my head were very much “conspiracy theories,” and I was saying all the typical “phrases” one says when having a mental breakdown. “It’s like I’m awake for the first time…” Or “I know this sounds crazy…”

If Charlie was here he would fix me. I know it. He would ask his probing questions until I would work myself away from whatever metaphorical ledge I happened to be standing.

All I want is my husband’s voice telling me I’ll be okay. I crave it in my soul. I am so unbelievably lost without him. He was everything to/for me for, nearly, 21 years of my life. To just “not have him anymore” truly feels alien. He was always there. Always. Whether I wanted him or not.

Grief is such a wild experience. Compound that with self-preservation and a fear of the unknown has brought me to this “psychotic” reality. And I would very much like to leave it. My biggest fear is that something in my brain broke last night, and I can never go back to that “normal.”

December 11, 2024

Family Weekend

It’s been a busy month. So much and so little has happened that I’m a little overwhelmed on how to write it all out. Which is another reason why I’ve avoided writing. That and the fact that I have lost any and all interest in the things I once enjoyed.

The other night as I lay in bed, forcing my brain to shut the fuck up so I can sleep, it occurred to me that the things I once enjoyed doing (writing and performing) have gone away. Now I look at things like narrative arcs or turning myself into a character for the stage/screen with confusion and fear. I imagine that it’s just grief. Or, most likely, depression. In the past I used these things as outlets and now I could not even be bothered. I’d rather just sit. Looking at the TV or my phone has become my favorite past time. And I genuinely hate it.

The only way to get back to doing the things I love is to do them. It’s really quite simple. And if it turns out that I genuinely don’t enjoy these activities anymore, then so be it. Life is always changing. For the good and the bad.

This past weekend my whole family (my in-laws, brother hubs, and bf) all went to Vegas to celebrate my husband’s birthday. It’s the first one without him, since he came into my life. I wanted to mark it with something notable. When the BF was offered a comped suite at the Rio, we booked it for this weekend. All 8 of us filled the room for three days, and it was wonderful. On my husband’s actual birthday, we went to a drag brunch, my family got to experience Omega Mart at Meow Wolf, and then in the evening we ate an amazing dinner at a high dollar restaurant. If my husband had been there, I think he would have enjoyed it too. And maybe he did…

The first morning in Vegas my brother hubs and I got some very bizarre news. We are distantly related by blood. We both had suspicions when his aunt told us, during our first and only visit to her place in Texas, that there were some “Hensley’s” in their family tree. I was taken aback because my surname is very unique and if you encounter one in the wild, there is a 80% chance I am related to them. Every generation preceding me had 6-12 kids a each. Legitimately. I am one of the few branches to only have a single child.

When Ancestry had a special on the DNA kit I bought one for the brother-hubs because I HAD to know. Plus it would make for a serendipitous coincidence.

The only part I don’t quite understand is that when I search for him, nothing comes up. HOWEVER, when I search for his aunt our DNA matches are either: half third cousin 1x removed OR third cousins 2x removed. So, it stands to reason that since she shows up for him, in his matches, then he should for me. The only caveat is that his aunt’s father is different than his mother’s, however the Hensley name is from his maternal grandmother… Maybe it just hasn’t updated yet?

The one person I want to tell all of this to is my husband. I know he’d be excited about it, and probably make the same joke our friend Kyrus made “evidently I have a type. Hensleys.”

May 2, 2024

Memories and Missed Opportunities

Last night was strange…

I went to bed and in the midst of my mumbling thoughts I started to think about the most random of memories of my husband. Little things, like when I would kiss his neck or the way he would tap his glass as he would take a drink. Then in morphed into thinking of our final day together.

He woke up and was madly messaging all of the people he’s been corresponding with these past few months. Then when he finally got up we watched The Birdcage. For the life of me I can’t even remember what else we watched. I had wanted us to bookend everything with a re-watch of Philadelphia but from behind his mask he firmly said no.

Once it got close to time, we retired to the bedroom and set up chairs all around the bed. We watched an episode of Taskmaster until the nurse got there. She wrote out the instructions to administer the drugs and split. (Which was not the plan by the way, but that is a blog post for another time.)

At 5:30 we took off his mask and waited. Almost exactly 6 hours later he was gone.

I replayed this over and over last night… Thinking of him lying in bed afterwards, there but not. He looked so peaceful. I would go in there and check on him, brush his hair. I could hear his voice screaming in my head “Josh, that is so weird. That’s a dead body. Gross.”

These memories made me miss him so much. I started to cry but stopped myself because I didn’t want to wake up Tony.

Last night I dreamed of Charlie and I adopting a child. We were asking my parents questions about what we would need and they were excited to meet their grandchild. It was such a lovely dream that I didn’t want to wake up. I got to have my family back for a very brief moment of time.

Charlie had said one time that he would be willing to have kids if we adopted. At the time I didn’t want that, I’d rather have a biological child of my own, but I figured if he was willing to meet me halfway I should too. Shortly after his tune changed and he didn’t want kids. This would be the pattern over the course of our relationship, mostly because we had yet to find our groove. We didn’t know what made us work and how to accommodate our shortcomings. By the time we had figured them out and became a stronger couple, we were in the midst of having an open relationship and he wouldn’t want to bring a child into that. Which is a fair assessment.

Then he was diagnosed with ALS.

In hindsight I am glad we never brought children into our relationship. It would have made everything exceptionally difficult, especially once I had to raise them and take care of Charlie all while trying to process my and our child’s grief. Maddening.

I think Charlie would have been an amazing dad. He was so patient and kind. They also would have been fucking spoiled. I know it. Between him and my parents… the kid would have never wanted for anything.

The thought of adopting now just breaks my heart. They would never get to know one of the greatest people of my life. Charlie would be some myth or legend, yet the reality would be so much more.

I’m glad I at least got to feel it in a dream.

April 8, 2024

April 12th

It’s strange. One would think that at the start of the worst week of my life I would have something to say. Something to impart on how I am feeling… But I have nothing. Genuinely nothing. I feel numb. As if I have hit pause on my entire body. I imagine if I were to pursue some answer it would say that it is some sort of trauma safety response… However I don’t have the time or the energy to do it. And in the end… what would this answer serve?

For some context, this Friday (April 12th) my husband will go to bed without his breathing mask. It is this mask that has kept him around as long as he has, and without it he will most likely pass way in his sleep. We have spoken with his hospice nurses and they will be there to help keep him comfortable as he “transitions” into the next stage of his existence.

I have known that this day was coming since he was diagnosed with ALS. It’s not like that this was sprung upon me out of the blue. I knew. I have known. It’s just weird to know the exact day. Prior to this I would wake up every morning and see if he was still here, or whenever he took a nap. I have been convinced for sometime that he would go while we slept. Primarily because that was what the doctors had told us was most likely to occur, and even before he had been diagnosed I would wake up in a panic throughout the night and see if he was still breathing. It’s weird. It was as if I knew.

All I want to do is open up my heart and pour out all I feel… I am craving some semblance of vulnerability but I have none. Is this shock? Maybe it is denial, until I am there to see and feel the reality.

For so long I have lived with the “not there yet” attitude. It was the title to our weird little video blogs we would do on our trips. It was literally the words I would say to myself in the early days of diagnosis, when my mind would spiral into all of the gory/overwhelming possibilities. To calm myself I would repeat “we’re not there yet” so I could focus on where we were in all of this. Well… we’re here.

The thing that is keeping me together is what Charlie said the other day, when I asked how he was feeling: I’m excited to see what happens next.