Memories and Missed Opportunities

Last night was strange…

I went to bed and in the midst of my mumbling thoughts I started to think about the most random of memories of my husband. Little things, like when I would kiss his neck or the way he would tap his glass as he would take a drink. Then in morphed into thinking of our final day together.

He woke up and was madly messaging all of the people he’s been corresponding with these past few months. Then when he finally got up we watched The Birdcage. For the life of me I can’t even remember what else we watched. I had wanted us to bookend everything with a re-watch of Philadelphia but from behind his mask he firmly said no.

Once it got close to time, we retired to the bedroom and set up chairs all around the bed. We watched an episode of Taskmaster until the nurse got there. She wrote out the instructions to administer the drugs and split. (Which was not the plan by the way, but that is a blog post for another time.)

At 5:30 we took off his mask and waited. Almost exactly 6 hours later he was gone.

I replayed this over and over last night… Thinking of him lying in bed afterwards, there but not. He looked so peaceful. I would go in there and check on him, brush his hair. I could hear his voice screaming in my head “Josh, that is so weird. That’s a dead body. Gross.”

These memories made me miss him so much. I started to cry but stopped myself because I didn’t want to wake up Tony.

Last night I dreamed of Charlie and I adopting a child. We were asking my parents questions about what we would need and they were excited to meet their grandchild. It was such a lovely dream that I didn’t want to wake up. I got to have my family back for a very brief moment of time.

Charlie had said one time that he would be willing to have kids if we adopted. At the time I didn’t want that, I’d rather have a biological child of my own, but I figured if he was willing to meet me halfway I should too. Shortly after his tune changed and he didn’t want kids. This would be the pattern over the course of our relationship, mostly because we had yet to find our groove. We didn’t know what made us work and how to accommodate our shortcomings. By the time we had figured them out and became a stronger couple, we were in the midst of having an open relationship and he wouldn’t want to bring a child into that. Which is a fair assessment.

Then he was diagnosed with ALS.

In hindsight I am glad we never brought children into our relationship. It would have made everything exceptionally difficult, especially once I had to raise them and take care of Charlie all while trying to process my and our child’s grief. Maddening.

I think Charlie would have been an amazing dad. He was so patient and kind. They also would have been fucking spoiled. I know it. Between him and my parents… the kid would have never wanted for anything.

The thought of adopting now just breaks my heart. They would never get to know one of the greatest people of my life. Charlie would be some myth or legend, yet the reality would be so much more.

I’m glad I at least got to feel it in a dream.

Trauma Glitches

Taylor A. Swift*! My memory is truly shit. Whole conversations or random pieces of information have failed to back up in my memory as if they never existed. The only trail that these moments occurred is proof in text. Thank Taylor* for that. Otherwise I would have no recollection. I would ask “what is that?!” but I already know what it is. It’s grief. It is also partially due to the fact that I am bandaging my grief in light substance abuse.

I’m not someone who does any sort of hard drug. My previous vices were alcoholism and prescription pills that did not have my name on the bottle. I didn’t think the second was an issue until my husband asked me how I slept so “soundly.”

“I could not wake you up. Why?” he had asked.

I had to then explain that one of my co-workers had given me her extra muscle relaxers, to which I then held captive in my sock drawer. As the explanation left my mouth I already knew that was a problem. Normal people don’t do things like that. We promptly discarded them (safely) after our conversation. So, whenever Charlie or I were prescribed heavy duty meds they were made aware. After that, they weren’t a problem.

Prior to meeting my husband I quickly spiraled into an alcoholic. At the time it didn’t make sense why, but after my “Soundtrack of My Life” project it became apparent that I had gone through some heavy-duty trauma that I neglected to address. Instead I buried it and took it onto the next relationship that ultimately added to the stockpile of depression. Therefore the only conclusion my 17 year old mind concluded was a “brilliant plan” was to drink. And I did, until my husband came along and said what I was doing was illegal and was going to ruin my life. He said he would not drink if I too stopped. We would do it together. It was easier for him than me, however I still got sober and stayed that way until somewhere around my 20th birthday. Then I drank a toxic concoction at a Halloween Party which made me utterly sick that I ended up puking all over Charlie’s car.

Liquor and I have had a bad relationship from the start. I want to desperately get drunk, and forget, and it likes to take it’s time until I am so overwhelmed that I am hammered to the point I black out.

I did that the other evening.

It’s amazing how quickly one falls into old destructive patterns. It resulted in making very unwise and dangerous decisions that, in sobriety, I could hear Charlie’s voice at the back of my mind, clear as day, say: that I need to set limits or I will kill myself. That would absolutely go against his wishes that I “live a long and happy life.”

The issue though is I ache. Even with antidepressants I have a constant smoldering pile of embers in the pit of my chest, burning for my husband. He has been with me for near 21 years of my life… him not being here is jarring, no matter how hard I attempt to suppress that truth.

I am completely out of my comfort zone. I have to deal with these feelings uninhibited or “assisted” but I genuinely don’t know how. Nor will my mind let me. It is truly a sight to behold when I bury my hurt subconsciously. It’s like a seasoned magician performing mundane slight of hand.

The primary reason I want to deal is because I can’t live with my life taking moments of my life and erasing them. I pride myself on my memory and not being able to do that will cause me more stress than not addressing the hurt I have.

*One of my favorite stand-up bits was George Carlin’s piece about praying to Joe Pesci. I loved it so much that I adopted it into my life with using “Albus Dumbledore” in the place of other fantastical beings. This was before we learned that Row-Row is missing an oar from her boat. So I have changed faiths and now pray to Tay-Tay.

Forever Blue

As I traverse this sea of despair I was just slammed with a rogue wave. It crashed over the side of my ship and I and scrambling to stay afloat.

Maybe that’s more theatrical than I meant it to be… but it applies. I’m sad. Deeply forlorn. I just want to text him to talk me through it but… unless I got a magic cell phone that’s not possible.

I’ve started talking to him out loud. I’ve come under the belief that after death we reach a higher dimension of existence where we can move back and forth through time to see how all of our loved ones lives turn out. Overcome by this delusion I think that I’m speaking to him observing my life. (Always gotta make it about me.) Charlie was such a curious person with so many questions that if there is a remote possibility that my fantasy is true he would do it. And I don’t want him to think for a second that I wouldn’t want him to be apart of those moments.

Just to clarify to any of whom may read this and worry I’m slipping into a psychosis… potentially. However I know he’s not really there and I know I’m just talking to myself. It is just nice to pretend. Takes the sting out of it. I even go so far as to “look at him” because we would make eye contact when we heard or witnessed the most absurd things.

I miss my side eye buddy.

Of Faith and a Spiritual Brother

When I was a little lad I vividly remember concocting an imaginary friend who was my brother. I referred and responded to him as such. I think I did this out of necessity and loneliness. I was an only child. One of my biggest dreams was to have a sibling. So, because my parents insisted that was impossible (since my mother had her baby box shut down) I made one up.

As an adult I’m glad I was alone. It made me stronger and more independent than my friends who have siblings. I feel like they rely too much on other people for things and that bugs. However I know that’s me being an “only child.”

Before my mother had me, she had a miscarriage. It was shortly after my mother and father had gotten married. It literally happened in the bathroom at the party her work threw for her after the ceremony. My mother said it was god punishing her for having sex outside of marriage. Which, if that were true that sounds like a sociopath and not a benevolent, loving father figure.

Shortly after she got pregnant again (I assume I was conceived on Valentine’s Day) and had me.

When my mother was going through the final months of her Alzheimer’s she started to see a little boy. One day I came to visit and my mother was talking down to a child, with the nurse standing watch over her. I stepped next to the attendant and she turned to me and said in a hushed voice “she’s talking to her son.”

“Well that’s odd,” I said, “I’m the only one she has.”

I said hello to my mother pulling her from this fantasy.

I’m not sure if it was this same day or a few days later my mom turned to me and said with clarity, which was rare because her disease had taken her speech from her and she could only utter garbledegook, that my brother had come to visit.

“Did he? That’s good.”

She then began to tell me that he was the same age as me, but not. He didn’t know very much, because “he hadn’t gone to school.” There was another thing she had said that was like me but different, but for the life of me I can’t remember. (Grief has done a number on my memory.)

These two events didn’t line up in my mind until a few weeks ago, when I remembered my imaginary brother. Since then it has called into question if he was made up. Maybe on some level he has always been with me and I could just feel him there.

This is all nonsense in the big scheme of things. Without concrete proof or examples it’s left up to faith. That is something I don’t have, not anymore. I abandoned spiritual beliefs when I realized that either there isn’t a god and everything is a chaotic meaningless accident, or there is a higher power and he is just incompetent or genuinely enjoys watching people suffer.

With that said, being surrounded by death does make you question even things you had once believed. The world is strange and there is no denying some things just don’t have explanations. Or one’s we can give with certainty.

My husband has been invested in researching the after life and reincarnation. (For obvious reasons.) Somehow my tiktok algorithm picked up on this and would show me videos of parents retelling events where their kids had said or known of details and events that they genuinely could not have otherwise. It was then that I was introduced to the concept of a “soul family” and how there is a belief that we reincarnate with the same collection of souls in different roles. I added my own perspective that we are given knowledge of these lives and offered a choice of what and where we want to go. It is this vein of thought that I wondered if my sibling knew what was going to happen in the future and thought that it’d be best if I took the role instead. This of course only being plausible if any of that spiritual stuff is real.

In the end it’s more likely that I am just trying to make sense of all of the chaos and trying to give it purpose and meaning, because it is what we do as humans. The other day I was ranting to the bf about what is the life lesson, what am I meant to get from these events happening all at once.

His response was ‘there is only a lesson or meaning if there is a god guiding everything.’ To that I cannot believe and to which I refuse. I’m sticking with the my accident/chaos theories.

The only other “fact” I have for this brother being with me is that I never feel alone. Granted I’m never physically alone. I am constantly around someone (much to my chagrin.) Even in these odd moments I am by myself I feel as though there is someone there. I could and do sometimes just turn to them and talk as though they’re listening. Although there is nothing there that would warrant this action. And it is nothing new. I have done this since I was little. It’s all just a feeling.