family

February 10, 2026

Does This Clown Taste a Little Funny To You?

Last night was a weird one for me. I spent most of my evening laying in bed “doom scrolling” details in the Epstein files. It got to a point that I started to physically feel fearful and repulsed, as if I had just watched some grotesque gore flick with a terrifying villain. Did that discourage me from continuing further? Oh no. I am a glutton for punishment and chaos.

At some point in my information consumption I had my interest piqued enough on the topic of Kuru that I started researching it.

Kuru is a disease that is caused by damaged proteins that have accumulated in the brain. It causes neurological issues such as: tremors, speech issues, dementia, muscle loss, and balance issues. All of these things I have witnessed in my mother, father, and husband until their untimely demise. Could this be the answer to why in the last 5 years I lost them all with very similar issues?

My mind spiraled out of control. In the abstract I can understand that this is just my brain trying to rationalize the abrupt disrupt and loss of my family. I get that. But… what if it’s my answer?

Well, the only problem with them having kuru is that it requires the consumption of human flesh, primarily the brain, that is tainted with… kuru. According to one of my MANY google searches, the last reported case was in 2004. This is a very rare and uncommon disease. In the history of the illness, it was primarily witnessed in a tribe that had a ritual of consuming their dead family members after their passing.

To my knowledge… My parents and husband were not cannibals. However, people do have their secrets. I didn’t know my husband was cheating on me, as I was actively cheating on him, until I caught him.

What this thought does do is lend credence to this fear that I have had over these last 5 years: that somehow/someway we were exposed to something that caused all of this.

When I would voice this to my husband, before he passed, he would immediately fire back, “Then why aren’t you showing signs?”

This is where I confess to the world that I am a chicken nugget and french fries man. I am the pickiest eater and won’t really venture out of my culinary comfort zone unless I am peer pressured into doing so. (Side note: I had a friend who had a serious peanut allergy tell me to try stuff at a buffet with a remark “it’s not going to kill you.” Shortly afterward we had to rush to the store to get Benadryl because the bitch didn’t bring her eppy pen.)

What if my family was given, without their knowledge or consent, human flesh to eat?

I have this really random memory of our trip to Lake Tahoe, where the wait staff watched us eat our meal, in an entirely empty restaurant. The reason it stuck out in my memory is because of how bizarre it was that they watched us… and how we were the only ones in the restaurant at dinner time.

All of these fears and assumptions are made worse by the very fact that we have only received half of the millions of files the DOJ possesses. And these are the files they were willing to submit. What’s in the other fucking half?

Now, do I really think that is the answer? No.

Is it just me trying to find meaning in their sudden deaths? Yes.

However… We cannot rule out this as a cause.

The only real certifiable answer I do have, that this is not the case, is that when my husband and I went to the Mayo Clinic for a second opinion to his ALS diagnosis, they tested him for everything while we were there. I imagine… that might have also included tests that would reveal signs of kuru. Like I said, it’s caused by deformed proteins. It’s not bacterial or viral.

(As I am writing this, I just had a random memory of a doctor asking him if he ate human flesh at one of his appointments where we all just laughed it off.)

In the big scheme of things, why does this even matter? They’ve already been taken from me. There is nothing that can be changed and having an “answer” does nothing but further fuel my confusion. Where would this have happened?! Why?

I need to just accept that life sometimes shops at Costco and we were just working through our bulk box of death.

January 9, 2026

The Soundtrack of My Life – 46 – A Minor Incident

Since spotify got off their bullshit to stop running ads for ICE, I have made a happy return to the streaming platform, even though it still uses AI for it’s suggestions and “wrap-ups.” And I thought “why not do another ‘soundtrack post’ with one of the most depressing fucking songs?” So, here it is.

Back when Charlie and I started dating, I got this album for myself from Best Buy (our favorite store at the time, since one had opened up in town) with a Christmas gift card. For whatever reason, this soundtrack makes me think of Christmas time. Maybe it’s because that was when I first saw it or because, of the two main characters, one of them lived on the wealth of their father’s Christmas song.

Also, I have this weird habit that when I fall into “depressive episodes” I will watch the same film on repeat. This was the film, at that time, that I had in a loop.

The story telling/writing in it is phenomenal and has some of my favorite actors in it: Rachel Weisz and Toni Collette. (Rachel Weisz is one of the 3 women who could make my forsake my homosexual life for a hetero one.) The musical score and the songs elevate all of this to another level for me. I had to have the soundtrack as my own.

As I do, I became hyper-fixated on 3 songs on the album. The one of above being one of them. It’s the song written for the scene when Marcus’s mom tries to end her life. The lyrics in it address the loss of words one experiences when faced with someone who attempted and, luckily, failed in their effort. So, what that had to do with Charlie potentially taking a job in Iraq at the time is beyond me.

The logic of teenagers is obtuse at best. They’re melodramatic and find resonance in things that don’t really pertain to certain scenarios. As like this one.

Charlie was an over the road trucker at the time, but he wasn’t making as much money as he wanted. He was always looking out for the next, better opportunity to further his ultimate goal: to be filthy rich like his dad.

As the made up war in Iraq/Afghanistan was killing innocent civilians and rebels fighting the imperial invaders over their oil, a job opportunity was presented to him by his father. His father worked for Oxy at the time. The salary for driving an oil tanker over there paid enormously, but it also was very high risk. (Obviously.)

He toyed with the idea because he wanted the money but terrified because he didn’t want this job to end his life before it even began. I wish I could remember how long he entertained the idea. From my memory it felt like weeks but I’m sure it was just A WEEK if not DAYS. Regardless, I told him, at the time, that I would wait for him when he came back. He told me that would be dumb, but I really wanted to live that “war wife” fantasy.

So in my obsession of the above song and him potentially going off to work in a war-torn country, I dedicated and played it for him, expecting some big “oh, wow, that meant so much” from him. Which shows how little I knew of my future husband at the time. I’m surprised I didn’t hear his eye-balls rolling from across town.

What I find odd about this song is it actually pertains eerily closer to how our relationship ended than it ever did at the start. Even as I listen to it now it was almost like I was casting some magical spell over our relationship and cursing us to the fates we found.

“There’s nothing I can say to try to make you feel okay. And nothing you could do, to stop me feeling the way I do… And if the chance should happen that I never see you again, just remember that I’ll always love you.”

I feel that in my soul, as trite as it sounds. The song echoes of the helplessness one feels watching someone struggle with something you cannot change. Then there is an undercurrent of understanding, that it is out of your hands but regardless the singer will be there. Through all of it.

As it pertains to us, it almost feels like each of us takes a turn singing one verse to the other. And in those verses that I feel Charlie would sing, they bring me comfort, even though the song breaks my heart. It also highly improbable that he would have ever openly admitted those words to me, even if he meant them.

April 14, 2025

This past Saturday marked one year since Charlie passed away. I finally got the chance to read the letter he had written for me. Of everything there the only thing that was new, or stood out, was when he used my nickname for him as the salutation. That was where I broke down.

Everything else in it were sentiments he and I had spoken to each other over the many years together. The one thing that made our broken relationship work was that we were never afraid to wade into difficult topics. We never shied away from the truth.

It is nice to have them in writing though. Sometimes my mind likes to lie to me and say that he never forgave me. Which, in itself is silly. We spent 20 years together. Someone who hasn’t forgiven you typically doesn’t dedicate even more time.

The day of, I spent with the family. We went to the zoo and just talked about him and his unforgettable personality. He really was one of a kind. I could really use his knowledge and point of view now. He knew what I needed to hear, when I needed it most. And if that didn’t work, he would always intervene.

This past year has been nothing but loss. Shortly after the husband passed, we lost our dog Jack. Then this week we put down our pup Lucy. She had cancer in her nasal cavity. It had gotten to the point that she couldn’t breathe through her nose. Fun fact… dog’s can’t breathe through their mouths when they sleep. At least, she couldn’t.

Then this morning, thinking of my aunt, I sent her a message to ask about her and her kids. The text went acid green, instead of blue. More than likely, she probably blocked me. Which… whatever. She might as well be someone else I’ve lost too.

Unburdened by the past leaves even more possibilities for the future.

March 27, 2025

Universes Collide

One of the things my husband (Charlie) was right about is that I never really think things through. I have a hard time placing myself into hypothetical scenarios unless I have been there before. That is, unless they’re the “camp” kind, if you get my drift. Even then I’m always way off base in one direction or the other.

The last year it has been unspoken knowledge that “after a year of Charlie being gone” the BF (Josh) would move into the house. All during this time I was completely unphased. My primary focus has been “once this is done I can relax” or “I can stop living ‘split’ lives.” So far, it has remained the same, however with today being THE DAY I am beginning to panic.

The only other person I have ever lived with, besides my husband, was my brother (Tony.) (And parents of course, but I ‘moved in with them’ so they had to make the adjustments.) I keep trying to think about why Tony moving in with Charlie and I never stuck out to me. It could be that when he “moved in” was shortly after my husband was diagnosed. At the time I was more distracted by the fact that he was dying to put focus on other little things that bothered me. On top of that, we were moving from one house to another because the one we had previously occupied would have in NO WAY accommodated his impending wheel chair. So as Tony moved in we were also moving in to an entirely new place.

All-in-all Tony came in with no issues. Well… that’s not completely true. I was bothered by his furniture pieces decorating our new house. I didn’t like them, at the time, because I’m a snob. I blame my husband. He was too. (We really were made for each other.)

The BF moving in is an entirely new experience for me. In the past it was me moving in with my husband from my parents’ house. I never had someone entering my space before. There was no “established” living conditions to throw into disarray with a new entity.

In my “panic” I have discovered some really odd quirks I previously had not invested my focus. For instance, my really overbearing “smell” issues.

I have a thing about odd smells. I will hunt them down like a blood hound (which my husband accused me of multiple times because how I would literally sniff them out) until they are found and eradicated. So having an entirely new human moving in with their own natural scents is really fueling my panic. Not only does he have his own natural aroma, his clothes have one, and then his cats. I love his babies as if they were mine (I mean… they are) but I will not abide my house smelling like a cat. I will do whatever it takes to make sure it does not stink. For whatever reason, I have deemed the stereotypical “cat smell” to be “low class” and “repulsive.”

On top of that… yesterday when I was helping box his stuff up, I used his clothes to act as cushions for the breakable possessions. That’s when I got a whiff of them. That night I asked him, insulting him in the process, if he would mind if we wash all of his clothes when he gets here. I also said I would help with the effort because I understood it was a bizarre and an overwhelming task. (Like I said… I have a thing about scents.)

Underneath all that, since I’m sure this is “masking” my insecurity of the whole episode, I am upset about the shift in dynamics. It was exacerbated by my brother when I got home and he was crying. He had spent the whole day moving his stuff out of the master into his room. Like me, he doesn’t like change and I feel guilty by causing him this discomfort. (Jesus, I am easily manipulated. I hate it.) It is a lot.

I keep thinking of things to do for my brother to make it easier for him or lessen the stress of all of this. Completely ignoring the fact that this is also a huge change for my BF too. He is literally condensing his entire life into mine. That takes an enormous amount of trust in me and our relationship to do. And I am scared that I will fuck it up with my eccentricities.

This morning, before I went to work, I warned Josh that I am going to be weird about the “smells” thing and to not take it personally. I am just weird. There is no other way to explain it. It’s me. I’m the drama. I know that for me to find a balance I have to be the captain of this “crazy ship.” The responsibility to seek solutions and put no further stress on everyone else rests entirely on me.