grief

April 19, 2024

One Week…

It’s been a week since my husband passed and it still doesn’t feel real. I act as if he is just in the other room or on some trip. Any moment he’ll be back or I’ll get a text from him and everything will be just as it has been these past 3 years.

Something I have discovered about myself is my “reaction to grief.” In writing I can be as vulnerable as I want to be because it’s a blank page or an audience that may or may not be there. I don’t have to worry about whether I sound too calm or too sad and I never risk making someone uncomfortable. Which is something I can’t do in person. When I’m around other people I put my feelings into a steel vault buried deep, deep within my chest. Only under the influence am I able to spin the dial and let them out for others to see in real time. Otherwise, without these explicit parameters can I share how I truly feel.

This past week I have been constantly around someone. Hardly do I get a moment to myself. Which is by design and is not a complaint, by the way. At the surface I’ve done it because I know that Charlie would have wanted me to be there for Tony, his mom, sister, and niece. Especially his mom. So I honor him by doing that, at my own “detriment.” I hide everything I’m feeling to be strong for those around me. Below this truth, lies the pernicious reality that I don’t want to face my emotions. I would rather pretend I’m strong. The unfortunate part is once they’re buried I neglect to ever pull them out again, and they grow into a thorny, viny weed to choke my joy. The one who would do everything to pull them out of me is the one I grieve for in his absence.

This grief is so complicated even without me hiding it.

The other day my mother-in-law asked me if I was “relieved.” This is a part of the entire process that I have tried so hard not to recognize because the very notion fills me with insurmountable guilt… I am.

I’m relieved that he isn’t suffering, that wherever he is he gets to begin again; and I am for myself. The 24 hour requirement for caring is done. No longer will I get requests to move his hands, give him a drink, help him use the bathroom, bathe him, give him his pills, or move him from one room to the next with all the accessories that follow suit. I can finally sit down and just exist without worrying that I will be asked to do something else. And that is where I feel like the biggest piece of shit. How can/could I feel that way when the person I love is gone?

Now I am left attempting to process everything with all of my bizarre idiosyncrasies, the character flaws I’ve developed to cope with the stresses of my life. I’m in therapy but again when I’m talking to someone I am “indifferent.” I reveal nothing because that would be showing weakness. If they knew how I truly felt they would think of me as a burden, or worse they would use my secrets to betray me. (Wow I sound psychotic.)

The other night I fell deep into familiar destructive habits. It was the same shit I did before I ever met my husband, when (then too) I was not facing my trauma. I made some very bad, deadly choices that in the clarity of sobriety I knew my husband would be utterly upset with me. I could hear him in my head, as loud as if he was standing in front of me, that I need to stop doing these things before they get out of control.

For once in our nearly 21 years together I listened with absolute determination.

April 8, 2024

April 12th

It’s strange. One would think that at the start of the worst week of my life I would have something to say. Something to impart on how I am feeling… But I have nothing. Genuinely nothing. I feel numb. As if I have hit pause on my entire body. I imagine if I were to pursue some answer it would say that it is some sort of trauma safety response… However I don’t have the time or the energy to do it. And in the end… what would this answer serve?

For some context, this Friday (April 12th) my husband will go to bed without his breathing mask. It is this mask that has kept him around as long as he has, and without it he will most likely pass way in his sleep. We have spoken with his hospice nurses and they will be there to help keep him comfortable as he “transitions” into the next stage of his existence.

I have known that this day was coming since he was diagnosed with ALS. It’s not like that this was sprung upon me out of the blue. I knew. I have known. It’s just weird to know the exact day. Prior to this I would wake up every morning and see if he was still here, or whenever he took a nap. I have been convinced for sometime that he would go while we slept. Primarily because that was what the doctors had told us was most likely to occur, and even before he had been diagnosed I would wake up in a panic throughout the night and see if he was still breathing. It’s weird. It was as if I knew.

All I want to do is open up my heart and pour out all I feel… I am craving some semblance of vulnerability but I have none. Is this shock? Maybe it is denial, until I am there to see and feel the reality.

For so long I have lived with the “not there yet” attitude. It was the title to our weird little video blogs we would do on our trips. It was literally the words I would say to myself in the early days of diagnosis, when my mind would spiral into all of the gory/overwhelming possibilities. To calm myself I would repeat “we’re not there yet” so I could focus on where we were in all of this. Well… we’re here.

The thing that is keeping me together is what Charlie said the other day, when I asked how he was feeling: I’m excited to see what happens next.

November 29, 2023

If there is no flight, then we shall fight

I never truly understood the concept of “fight or flight” until recently. And when I say that, I mean within the last two weeks. Prior to two therapy sessions ago, my comprehension of the saying was: either “fought for their life” or “ran away to survive” in life threatening situations; like being held up at gun point or rape. It never occurred to me that these moments could occur at any time. It’s a trauma response.

The last few months I have been at home. It began at first as a way to cope with the panic and anxiety I had that my husband was starting hospice care. Since then I have not left the house. For the most part, I stay at home and care for my spouse.

At the start of October I returned to work doing miscellaneous jobs from home, only leaving for (at most) 2 hours to do an inspection. It started off fine, but it has since become a sort of prison. I can’t escape when I want and I can’t do what I want because I have my husband who needs me. The worst thing that could happen is for something permanent to occur while I’m gone.

It is here where the “psychological response” became vividly clear.

My tendency is to run away from situations. I’ve done it since I was a kid. If I was feeling uncomfortable I would just escape to my room, go on a walk or just drive for hours with no destination. Now that I cannot do that because of circumstances and my own unwillingness to leave for fear of what may happen… I have become angry. I fight, but not in the way one would expect. I don’t pick fights verbally or otherwise. No. I just get cold, quiet, passive aggressive or redirect it into something unrelated. It’s the way I alleviate the feeling.

Lately I have started to “fight” with my husband. I try, as quick as I can, to remind myself of the reality, how I really feel. Most of the time it works. Sometimes… it takes a little bit. I will bring up long since dead fights, grievances or misdeeds to justify my rage. Essentially I’m picking a fight. Fortunately it’s just with the shadows of the past, in my own head. The guilt I feel after these response moments is so heavy.

I have yet (and universe willing) have done so only in my head. I know, without a shred of doubt, I would forever hate myself if I were to ever let my thoughts leave the safety of my mind.

There is no conclusion or real resolution I can impart. Just wanted to share this clarity in the hopes of helping someone else. Maybe another reader has yet to get the basic principle. The one that sounds so simple, but lacks any specifics to its deeper meaning. Well, it’s an oversimplification for me at least.

November 15, 2023

Wallowing in my feels

The word overwhelmed does not accurately describe how I feel. If anything it drastically undercuts the reality of my situation. Every day I wake up and wonder if this morning is going to be the one where I find my husband has died in his sleep. When I see that he hasn’t, I pretend like everything is normal when it is anything but considering I have to do everything for him, on top of caring for myself and keeping everyone sheltered and cared for. Then to top all of that off because the government has decided to keep interest rates so high, I have next to no work. So there is little to no money coming in. What money I received as inheritance is now dwindling away. Leaving me with nothing.

Then come the emotions. I feel trapped in my life and I want freedom but that would mean I wish my husband’s demise. Which only makes me feel guilty and horrible for even having these thoughts cross my mind. I just want to scream.

I would never wish this on anyone. It is truly maddening. At times I feel like I am being punished for something. Like I wronged someone somewhere.

The Christian teachings of my youth say it’s god punishing me for turning my back on him. And all I can think is what kind of “loving” god punishes you for not WORSHIPPING him. Which makes this high power sound like a sociopath.

I feel like I am just an observer in my life. I’m not living. I’m surviving, making it just in the nick of time.