One Week…

It’s been a week since my husband passed and it still doesn’t feel real. I act as if he is just in the other room or on some trip. Any moment he’ll be back or I’ll get a text from him and everything will be just as it has been these past 3 years.

Something I have discovered about myself is my “reaction to grief.” In writing I can be as vulnerable as I want to be because it’s a blank page or an audience that may or may not be there. I don’t have to worry about whether I sound too calm or too sad and I never risk making someone uncomfortable. Which is something I can’t do in person. When I’m around other people I put my feelings into a steel vault buried deep, deep within my chest. Only under the influence am I able to spin the dial and let them out for others to see in real time. Otherwise, without these explicit parameters can I share how I truly feel.

This past week I have been constantly around someone. Hardly do I get a moment to myself. Which is by design and is not a complaint, by the way. At the surface I’ve done it because I know that Charlie would have wanted me to be there for Tony, his mom, sister, and niece. Especially his mom. So I honor him by doing that, at my own “detriment.” I hide everything I’m feeling to be strong for those around me. Below this truth, lies the pernicious reality that I don’t want to face my emotions. I would rather pretend I’m strong. The unfortunate part is once they’re buried I neglect to ever pull them out again, and they grow into a thorny, viny weed to choke my joy. The one who would do everything to pull them out of me is the one I grieve for in his absence.

This grief is so complicated even without me hiding it.

The other day my mother-in-law asked me if I was “relieved.” This is a part of the entire process that I have tried so hard not to recognize because the very notion fills me with insurmountable guilt… I am.

I’m relieved that he isn’t suffering, that wherever he is he gets to begin again; and I am for myself. The 24 hour requirement for caring is done. No longer will I get requests to move his hands, give him a drink, help him use the bathroom, bathe him, give him his pills, or move him from one room to the next with all the accessories that follow suit. I can finally sit down and just exist without worrying that I will be asked to do something else. And that is where I feel like the biggest piece of shit. How can/could I feel that way when the person I love is gone?

Now I am left attempting to process everything with all of my bizarre idiosyncrasies, the character flaws I’ve developed to cope with the stresses of my life. I’m in therapy but again when I’m talking to someone I am “indifferent.” I reveal nothing because that would be showing weakness. If they knew how I truly felt they would think of me as a burden, or worse they would use my secrets to betray me. (Wow I sound psychotic.)

The other night I fell deep into familiar destructive habits. It was the same shit I did before I ever met my husband, when (then too) I was not facing my trauma. I made some very bad, deadly choices that in the clarity of sobriety I knew my husband would be utterly upset with me. I could hear him in my head, as loud as if he was standing in front of me, that I need to stop doing these things before they get out of control.

For once in our nearly 21 years together I listened with absolute determination.

The Soundtrack of My Life – 7 – Time in a Bottle

There is something other-worldly about this song. The guitar intro trickles in like pixie dust drifting through the air. The shimmering specks land on the closed eyes of a sleeper and transports them to another place and time. It’s a bittersweet imaginary adventure where they enjoy the moment for what it is, but know that it won’t last.

It’s weird. This song takes me to a time when everything was very real, but life still felt like a dream.

My father had started to have trouble walking again. He had had this issue once before when he had been diagnosed with hydrocephalus, which is fluid on the brain. At that time, my husband and I were convinced it was because my dad was just fucked up on prescription pills. When he got out of surgery it was like someone had flipped a switch. He was walking and moving better than he had been before.

Fast forward 10 years and we were back to the same. This time it wasn’t as bad. It was basically just a stiff leg that was causing him pain. Oh, and the little thing of him repeatedly falling.

I accompanied my mother and dad on his doctor’s visit down to a specialist in the LA area. There they said they were going to do a spinal tap and test the fluid to see what was causing him this issue. They didn’t know then, but I am almost certain it was ALS related. There are just too many coincidences for me.

On the way back from that visit, I told my dad, “What do you want to listen to? Anything in the world, what would you want to hear?” He mumbled out “Jim Croce.”

I pulled up spotify and started playing the top hits, and this was the first one.

I may have heard it growing up but I don’t think I was paying attention to anything adults did. I was pretty self absorbed and really only focused on what interested me. A bluegrass/folk singer would be right at the bottom of the list.

What’s funny is I am a lot like my dad. I share with him an obsession with music and a particular habit of repeatedly playing the same song. There was a story of my father doing this with a tape while on a road-trip with my mom. He would listen through, stop it, rewind, and play it again. He drove my mother so nuts with this that she ejected the tape and threw it out the car window. I don’t know what song it was, but I just have this gut feeling it was this one.

The early Monday morning we had my mother’s appointment to confirm she was in the early stages of Alzheimer’s, I noticed some big bruises and cuts on my dads arms.

“What’re those?” I had asked.

“I fell two times yesterday,” he said.

I joked and said he needed to be careful and should I buy him a helmet? “Do you need a life alert?”

He chuckled.

I should have bought him a helmet. I should have given him a life alert.

That following Thursday morning, while he was using the bathroom, my dad fell and hit his head on the edge of the counter. He made it to the bedroom and from my mother’s COUNTLESS, gruesome retellings (complete with re-enactments) he called for help and began to seize. My mother’s idea of “helping” was running outside and literally yelling “help.” Not… dialing 911. And even when the school bus driver told her do just that, she rushed inside and forgot the number.

I’m pretty sure my mother’s disease will, in the end, claim two lives.

That morning I got a call from my dad’s cellphone but instead of his voice was a stranger’s. She told me that he had been taken to the hospital. I went to work as normal and then informed my boss of what happened. I got my mother and went to the ER.

He was braindead by the time we got to see him.

I called my mooch of a “step-sister” (it’s complicated) to let her know. She cried and told me to play (of all the bands my dad loved) Jim Croce for him. For a brief moment I thought she actually cared and could be a real “sister.” But then she began her grift the weeks following. Didn’t send flowers. Didn’t do anything. She was a “Hensley” in name alone.

We pulled my pop from life support and he was gone in seconds.

That following Saturday evening my husband orchestrated this little get together at a bar to celebrate my dad’s life. (This was also the first time Josh ever hung out with me and Charlie. He was uncomfortable at first, but because of the circumstances powered through.)

We hijacked the jukebox and played Jim Croce all night and drank all of my dad’s favorite spirits in his honor (peppermint schnapps and Coors.) I don’t think I have ever cried as much as I had that night. Nor do I think I have ever been as drunk. Good lord…

“Time in a Bottle” is a sad melody, but in the chorus for a brief moment there is a turn and it becomes hopeful and bright. I live for the chorus. I belt out the lyrics as hard and as loud as I can muster every time.

But there never seems to be enough time
To do the things you want to do once you find them
I’ve looked around enough to know
That you’re the one I want to go through time with

Like life, the song is mournful for the loss of time, the microscopic moment we all get to experience it. It is loss, it is pain, but there is brief moments in that sea of yearning that are hopeful. They give us enough joy to carry on to the next chorus.

Chocolate Smiles

Alzheimer’s is strange. Honestly, if she has to have some debilitating sickness, I wish my mother could have been diagnosed with anything else. At least then there is a possibility of a cure or recovery. With this it is just a trudge to the end. And in the end, it takes everything from you.

My mother is, mentally, a child. Well, preteen. She gets excited for visits, loves cookies, and watches romantic comedies like they’re going out of style. Really, she’s me circa 13 years old. Back when I still had hope.

The childishness was never more prevalent than a couple weeks ago when the husband and I took a trip to see my cousin’s new born. The husband had made a batch of chocolate chip cookies and brought them to her, which she insisted bringing half with us on our road trip.

She left them sitting in the sun so they got gooey and the chocolate started to melt. This new state of cookie existence did not stop her. She chomped away happily.

I was not aware of this until she made a garbled statement from the backseat and I turned to see her with a chocolate grin and matching fingers.

The husband doesn’t believe in tissues or napkins in his car (“cause I’m an adult that doesn’t make messes”). So we had to make due with a handkerchief (previously owned and used by my grandmother) and a bag.

What this event taught me was I need to carry wet wipes whenever my mother is around. Maybe even a diaper bag for good measure.

The more upsetting aspect of this is that while my mother is mentally a child, she is also still an adult. And she still believes that regardless to the facts to the contrary. So I am left to walk this fine line between being a son and being a caretaker.

It sucks.

This week we finally see a doctor for the growing list of her maladies. And hopefully in it get the final letter I need to get power of attorney. There is no doubt I will achieve my goal, it just means a legal turning point in this whole saga.

A Bookmark of Life and Loss

When I first met the man that I would refer to as my “bear cub” I hated him. I thought he was a narcissistic douche bag that I did not find the least bit funny. He thought he was hilarious. He came into my high school theater class making off-color jokes and being generally obnoxious just as I was getting out of it, and I would not see him again until we participated in a show down in LA called “You Make Me Physically Ill.”

For whatever reason when we reconnected, I fell in love with Jacob in a very non-sexual way. I felt this intense need to protect him and would defend him with my life if it came to that. I jokingly told him that my husband and I were going to adopt him, even though he’s only a couple years younger than me. (We have a habit of taking in strays.) Because I felt like a mama grizzly whenever anything pertained to him I would henceforth refer to him as my “bear cub.”

Yesterday I found out that he took his own life. The moment I got the text my eye caught sight of just his name and I already knew. If there was anyone who would commit suicide it would be Jacob. He dealt with the darkest of demons that I could not fathom what it must have been like to reside in his head. I think that’s why I found this need to protect and care for him. He, in many ways, reminded me of my father.

Now I walk the path every person who has lost someone to suicide travels: I am thinking of how I let him down and how I could have done more to keep this from happening. I feel shame in that I never spoke much with him after he moved to a different state, even though I did think about him often. Most recently he’s been in my thoughts because the upcoming Pokemon game is a remake of yellow and that was his favorite of the games; because you could get all three starters. I meant to reach out but I didn’t. I don’t know what stopped me. And I don’t even know that if I had, if that would have made any kind of difference. The thing about mental illness is that it is unpredictable and the best of intentions can sometimes be fruitless. Yet, we still have to try.

I can’t lend any new perspective or advice to the situation. In the end, it is what it is and nothing can be undone.

I will miss him.