Panicworks

It’s late and I can’t stop thinking. My body has decided to go through “anxiety drills” and I keep having short and intense panic attacks. I wish I could say that I don’t know where they’re coming from but I do.

My husband has drastically declined these last couple months; ever since he got the feeding tube. We had gotten it as a precautionary thing but it just feels like we hit the gas on his ALS.

We had a big family trip to Las Vegas planned for the 18th. However my husband canceled those plans tonight because he doesn’t think he can physically do it. I don’t blame him. His speech and breathing have gotten bad just these last few days. At times I can barely understand what he’s saying. (It’s like my mother’s Alzheimer’s all over again.)

Just a couple weeks ago we were having a preemptive conversation about him maybe getting a breathing tube (trach). During this he was leaning towards doing it, but after his doctors appointment he has decided not to get one. If he were to do that it would require (literal) 24/7 care. The brother husband and I would need to take classes for his care. My husband wouldn’t be released from the hospital unless they felt that we were competent enough to handle it.

My husband already feels like a burden as it is, so once they told us this I already knew his answer without having to ask.

I’m not ready to lose my husband. I’ve known that the ultimate day was just over the horizon, but even with all the preparation it still destroys me. I can’t imagine a life without him present. Without his impish smile when he does something sinister. Without his advice, his words. He is the ultimate “Josh Whisperer.” (That’s me by the way. I’m josh.)

I just have to keep reminding myself that we’re not there yet. It hasn’t happened.

A Eulogy of Sorts

It’s taken me nearly a week to process the news that my husband’s best friend and close family friend took his life last week. At first all of us were numb to it. The notion that he would was never in question. It has always been a “when.” It’s a dark an unfortunate truth, but real nonetheless.

I didn’t start to feel sad until I drove through his old neighborhood this morning, in a tiny pocket of homes in the north side of town. I remember going there once with my hubby back when we had just started dating.

The first time I had ever heard about Phil was during our second “date.” Nothing noteworthy or grand, it was just a late-night drive up to his dad’s cabin, about an hour north of town. At the time my husband was a truck-driver and had odd hours and infrequent days off. Me being jobless, still in high school (senior year), I was able to meet up with him whenever he could. We hopped into his white Mustang and drove winding back-roads to this little place in the woods.

At one point during our drive, my husband started chuckling to himself.

“What is it?” I had asked.

“It’s nothing.”

“No, what is it?”

“You’re going to judge me.”

“I doubt that.”

“Okay,” he had replied and then proceeded to drop, “I fucked my friend’s wife.”

I was stunned. “Okay… I’m going to need more.”

At the time my husband’s best-friend was heavily into meth. This event had played out while all of them were drunk at Phil’s place. Charlie was passing in and out of consciousness on the bed, and both Phil and his (ex)wife were high on meth. Instead of her husband satisfying the drug induced urges, because Phil was obsessively searching the internet for parts to a VW he was working on, his wife took advantage of my drunk husband. The whole ordeal is fucked up when you lay it out, but my husband turned it into a humorous story.

I was still coming to grips with the fact that my first boyfriend I ever “loved,” had dumped me because he didn’t think he was gay. (Or so he said.) I had vowed never to date anyone questioning their sexuality. I didn’t want to have to deal with that level of paranoia. Dating a bisexual was not something I wanted. This was when I still had the typical “gay” bias against bisexuals. I didn’t think they were “real.” I don’t think that at all now. Not even a little. (Just from my personal observed experience.)

His story did not tickle me in the slightest but I played it off like I was amused. The idea of us actually dating wasn’t something I wanted, so this story wasn’t upsetting. It was just odd. But, my husband is odd.

The first time I ever met Phil in person, this story playing in my mind, was when he came to pick me up from my place. Charlie was super drunk in the backseat of his crew cab truck. My husband was falling all over me, telling me how much he liked me, how hot I was… y’know, the usual drunk conversation. I wasn’t as adept at handling my drunk husband at the time and found this very, very irritating. Especially when he would ask me a question and then stop me mid-way through my answer to ask another; because my response bored him. The entire interaction started off bad, but then we swung through the Del Taco drive-thru and it took a huge turn. As we waited in line, Phil whips out a clear glass pipe and smokes meth right there, behind the wheel of the vehicle.

“This is where I’m going to die,” I thought. “I’m going to die.”

The dude in the passenger seat, who’s name and face escapes me, was unphased. As was my husband. However, Charlie could tell I was bothered and told him to put it away. Which Phil did.

“Sorry,” he said through a cloud of white smoke.

Phil dropped us off at Charlie’s apartment downtown and it would be sometime before I saw him again.

My husband’s and his relationship was like the seasons, It went through phrases, came and went. But their love and bond was always there. Nothing could shake it. When it came around again, they were right where they left off.

At first I genuinely disliked Phil. For good reason, I feel. I thought he was a loser and a bad influence on my husband. Whenever they got together Charlie would drink to excess. Most of the time I wished Phil would just go away.

Yet, he surprised me.

Phil got sober, cold turkey. He ditched every person he had gotten high with and found a new life in sobriety. This turn-around gave him godlike status to me. I struggled to quit smoking, and didn’t until October 2022. He got sober from meth in 2005.

After drugs he ditched alcohol and then realized his mental health required attention. The man was unstoppable. His constant ability to better himself was incredible.

The one thing that anyone who knew Phil would say: “He was always there to help.”

He truly was. After my husband’s diagnosis he helped us paint our old house and move. He let us stay with him for a few months while we waited on our new one to be built.

On my apple watch I have a series of deep cuts in the glass, along the top. I hate them and the way they make my watch look but I cannot bear to replace it for a new one because of what those scratches represent.

One night my husband and Phil got together for a drink at their favorite bar. This was early in the stages of Charlie’s disease, and long after Phil had started drinking again, but reasonably. (He always knew when he had had enough.) I got a drunk text from my husband to join them after work, which I did. Seeing as how it was just around the corner from my office, I saw no reason not to.

I got there, had a lone cocktail and bullshitted. At some point I went to bathroom and Phil followed after where he broke down crying about Charlie. I hugged him tight and let him cry into my shoulder. Little did I know that as he lost balance and banged my watch against the tiled wall, the grout had damaged the glass.

When I asked my husband how he was, when we were alone, he said, “There are only two people I worry about the most with me dying, my mom and Phil.”

There is so much I could share about Phil, as he has been a huge part of our lives. It’s because of him that Charlie and I got back together in 2008. He never judged his friends and family, and was always there when it mattered. When you needed him. He will be missed.

Just a Little Anxious

I feel as though I’m a broken record skipping and popping over the same fucking track, depression. For once I am regularly taking my meds. I’m not drinking, which with Lexapro is an issue because it makes it leave my system. Yet regardless of my taking it daily I am still sad. Well… not frequently. The swings are just giant arcs from one feeling to the next. Today’s seems to be the worst.

In addition to the sadness I am also riddled with anxiety. It is sitting like a bowling ball at the top of my stomach distracting me from thinking of anything else. What adds to this anxiety is this morning my husband appeared weak. Weaker than he has been the past few days. Now I can only compare this same feeling of anxiety to the day I felt the same, when we got his diagnosis.

I am sure it is nothing. It could be a great number of things causing these feelings. The primary one being, the meds aren’t working or are not strong enough to combat the level of my mental illness. I would much rather up the dosage than have to return to the parade of drugs that cause me more irritation than the last.

To ward off any further anxiety regarding my husband, I will just finish up at the office and work from home. I don’t like doing that because I will inevitably get pulled away from my work to do some task or I will have access to a whole pantry filled with food that I have (evidently) set as my task to devour before the end of the week.

Reflections of a Journey

I was a really weird kid growing up. I’ve been “myself” for as long as I can remember, marching to the beat of my own (off-beat) drummer. I was one to say “Thank you!” when a kid called me weird, with his eyebrows forming a single line of disbelief. Sure my response made me an odd-ball to my peers but then (and now) I rather have been weird than try and “fit in.”

One of my more obscure and bizarre characteristics was that I also craved “a struggle.” I distinctly remember watching “Angels in the Outfield” and being annoyed that I had two loving parents who were there for me. I wanted to be Joseph Gordon Levitt’s character, a foster kid who “wanted” a loving family, instead of actually having one. So, when I say I was weird, this is mainly where that statement roots.

From a young age I liked drama. I wanted a real story to tell and the one I was “living” wasn’t very “exciting.” I imagine that is why I became a writer. If I couldn’t have the drama I would cast myself as the lead and punish myself through the written word. Forcing myself through bizarre obstacles wherein I come out triumphant on the other side.

During high school I had longed for some “drama” because I felt as if life had grown too mundane for me, and then it turned topsy-turvy. I lost my circle of friends, I jumped out of the closet, and found a whole new group of companions. It was a strange time. The thought I had had at the settle of everything was “be careful what you wish for…”

In my early 30’s I felt as though my life had once again gotten stale. I had gotten stuck in a rut with my job, my relationship, and my emotions. Once again I longed for some sort of excitement or… Drama.

As I love to do, I once again reinforced the fact that I never, ever learn from my past mistakes.

In a whirlwind of events I lost my dad, my mom was diagnosed with Alzheimer’s and then my husband was diagnosed with a terminal illness. All in the span of a year. Oh, and the world was plunged into chaos with a pandemic. So life has been interesting since 2019.

I wrote all of that to say today marks the 1 year anniversary of my mother’s passing.

The first thing my husband said to me, after I got the news she had left this reality, “You’re an orphan now.”

It’s a strange realization. You never think of someone in their (mid) 30’s being an orphan. Yet once you no longer have your parents that’s exactly what you are.

I look back on those feelings of wanting to be “an orphan” and cringe. Why would anyone want that? Just for the sake of drama? That’s insane. Really… unhinged.

Yet if I break it down I think I wanted a struggle, a hero’s journey so to speak. Something that would be my “call to action” to bring me out of my complacency and put me on the path to becoming a “hero.”

When the call finally came, I was and am a very reluctant, flawed hero. Every bit of these past three years was thrust upon me and I want nothing to do with it. But being the valiant protagonist I accepted my fate, begrudgingly. It’s my desire to be the knight in white that keeps me going. Even on the days that I am so exhausted I just want to disappear from this world.

I hope I was the hero for my mom. Everyday I question whether or not my every choice was the right one. Even now, they feel wrong. I feel like I somehow failed my “quest.” But how did I expect it to end? There is no escaping the clutches of Alzheimer’s.