dying

October 27, 2025

“You and I”

One of my favorite time of years is coming up, NaNoWriMo. If you’ve been reading this trash blog for some time you will know I have done this event a few times in the past. The first time I participated, I wrote my first ever novel length work of fiction. The one I subsequently have edited the last 12 years of my life.

For this years assignment I decided that since it starts on Charlie’s and my wedding anniversary (as it does every year) I wanted to write about our life together. It was something I had come up with back in April when I had a TikTok go viral. It was a brief cut of our “Not There Yet…” video blogs along to the song “I love you, I’m sorry” by Gracie Abrams. (I’ll post it below.) It exploded more than I had ever thought possible. And it showed me that people cared. The comments are where it really thrived because I had people tell me their own sad stories or give their condolences. Of the hundreds of messages 98% of them were the beauty and kindness humanity is capable of offering.

This lit a fire in me.

I decided that I was going to write a book about our life together. I began brainstorming and came up with web outlines that really shaped the narrative of our life together. It gave me the perspective that there is something there TO share. It wouldn’t just be a random collection of events strung together with only the narrative thread that I would one day lose him. There was advice for polyamory, infidelity, growth, marriage, family, and eventual loss. And not to forget it would give my husband’s death even more meaning.

But like most of my good ideas, my enthusiasm fizzled out and I was consumed once again by the shroud of my depression. Which is fine. I’m grieving. At least, that’s what I keep telling myself.

To keep my idea alive I kicked it down the road and told myself to do it in November, when I have the chance to participate in the month long writing event. Also, around the same time period of when we started dating in 2003.

I had debated with myself if I wanted to keep it private or post each entry onto my webpage. What I have come to is: for the sake of uninhibited emotions I will write it for myself. Of course, with the intention that I will get it published because why would I write something if not for a reader to read it?

This morning, to get myself in the headspace to begin this month long journey, I put on an album Charlie had given me when we first dated, Jason Mraz’s “Waiting for my Rocket to Come.” It makes me think of him every time I listen to it, and of those early days. This little exercise sent me into a downpour of tears.

The first song on the album is “You and I.” In the past it never really stuck out, but today it did for the simple fact that out of all of the songs on the album (within my “genesis” playlist) this had it’s own album art. Every other track has the actual cover, where he’s sitting on a curb talking to a rooster.

As the song played on the lyrics popped. For the first time I really listened to the song, but within the context of doing this project. It felt like Charlie was talking to me, and that’s what brought about the tears.

(I would post the song for you to listen, but I am no longer using Spotify as they support ICE. And I am nothing if not a bleeding heart hippy liberal douche.)

As a result, where I had been unsure if I was really going to follow through, this gifted me the resolve to actually do it and not just say so. It was my husband prodding me from beyond the grave. Well… beyond the wood box that currently rests on my dresser, in which he resides. (I am cackling at my own joke. I hope you did too.)

@opinionatedandcrazy

My husband was diagnosed with ALS during 2020 and passed 4 years later. Even with a pandemic that didn’t stop us from doing road trips. #als #grief #loss

♬ som original – ᴀᴛʟᴀs
February 11, 2025

Ramblings of a Mad Man

Today is one of those days where I really, really, REALLY miss my husband. More than anything. If I could, I would give everything up just to be able to talk to him for one second; to hear his deep voice tell me: “…everything is going to be alright, dear.”

Last night I apparently watched enough TikTok that I went into a downward mental spiral. The thoughts racing through my head were very much “conspiracy theories,” and I was saying all the typical “phrases” one says when having a mental breakdown. “It’s like I’m awake for the first time…” Or “I know this sounds crazy…”

If Charlie was here he would fix me. I know it. He would ask his probing questions until I would work myself away from whatever metaphorical ledge I happened to be standing.

All I want is my husband’s voice telling me I’ll be okay. I crave it in my soul. I am so unbelievably lost without him. He was everything to/for me for, nearly, 21 years of my life. To just “not have him anymore” truly feels alien. He was always there. Always. Whether I wanted him or not.

Grief is such a wild experience. Compound that with self-preservation and a fear of the unknown has brought me to this “psychotic” reality. And I would very much like to leave it. My biggest fear is that something in my brain broke last night, and I can never go back to that “normal.”

January 16, 2025

Missing Peace

My husband was entirely too considerate. He would see/sense the frustration on my face while I was helping him and would always apologize. Nothing specific, just for being a “burden.” Hearing it would break my heart, because it wasn’t the helping him with (literally) everything, it was the impending loss of him that frustrated me. I equated watching/caring for him like dragging a sharp blade slowly across my skin. The image doesn’t encapsulate everything I wanted. It just brings to mind the torture of it all, and the unknown survival.

What I knew then, that I am very, very well aware of now, is that I dreaded his absence. Just thinking of him not being around caused me so much panic that I would begin to hyperventilate.

The last two days I have missed him terribly. We are entering a very scary time. My rock and the one who knew what to say to make me feel better, is gone. I’m left to handle my emotions alone, however chaotic and confusing they will inevitably be. There are those around me who will and do help. They are just not to the level my husband achieved. Maybe it is because he had 21 years to perfect his process.

In the beginning, he didn’t know how to handle me. I am a live wire. It takes a certain level of finesse to comprehend why I do the things I do or why I feel a particular way. In those early days he sure as shit knew how to push my buttons. Ones he would deliberately press to listen to the cacophony of noises that would erupt from me. He watched my explosion with glee until it would inevitably take a dark turn and he’d have to deal with the repercussions of having done it. Only through his “practice” did he learn.

More than anything I want him here with me. I miss him terribly. I finally comprehend why people leave this mortal coil after losing the ones they love. They’re chasing the belief that they will see them again. That it will be instantaneous. That the person you crave more than air will be waiting on the other side, hand open to welcome you there. Unfortunately, it’s all fantasy. A human mind trying to rationalize a very spiritual event.

May 2, 2024

Memories and Missed Opportunities

Last night was strange…

I went to bed and in the midst of my mumbling thoughts I started to think about the most random of memories of my husband. Little things, like when I would kiss his neck or the way he would tap his glass as he would take a drink. Then in morphed into thinking of our final day together.

He woke up and was madly messaging all of the people he’s been corresponding with these past few months. Then when he finally got up we watched The Birdcage. For the life of me I can’t even remember what else we watched. I had wanted us to bookend everything with a re-watch of Philadelphia but from behind his mask he firmly said no.

Once it got close to time, we retired to the bedroom and set up chairs all around the bed. We watched an episode of Taskmaster until the nurse got there. She wrote out the instructions to administer the drugs and split. (Which was not the plan by the way, but that is a blog post for another time.)

At 5:30 we took off his mask and waited. Almost exactly 6 hours later he was gone.

I replayed this over and over last night… Thinking of him lying in bed afterwards, there but not. He looked so peaceful. I would go in there and check on him, brush his hair. I could hear his voice screaming in my head “Josh, that is so weird. That’s a dead body. Gross.”

These memories made me miss him so much. I started to cry but stopped myself because I didn’t want to wake up Tony.

Last night I dreamed of Charlie and I adopting a child. We were asking my parents questions about what we would need and they were excited to meet their grandchild. It was such a lovely dream that I didn’t want to wake up. I got to have my family back for a very brief moment of time.

Charlie had said one time that he would be willing to have kids if we adopted. At the time I didn’t want that, I’d rather have a biological child of my own, but I figured if he was willing to meet me halfway I should too. Shortly after his tune changed and he didn’t want kids. This would be the pattern over the course of our relationship, mostly because we had yet to find our groove. We didn’t know what made us work and how to accommodate our shortcomings. By the time we had figured them out and became a stronger couple, we were in the midst of having an open relationship and he wouldn’t want to bring a child into that. Which is a fair assessment.

Then he was diagnosed with ALS.

In hindsight I am glad we never brought children into our relationship. It would have made everything exceptionally difficult, especially once I had to raise them and take care of Charlie all while trying to process my and our child’s grief. Maddening.

I think Charlie would have been an amazing dad. He was so patient and kind. They also would have been fucking spoiled. I know it. Between him and my parents… the kid would have never wanted for anything.

The thought of adopting now just breaks my heart. They would never get to know one of the greatest people of my life. Charlie would be some myth or legend, yet the reality would be so much more.

I’m glad I at least got to feel it in a dream.