marriage

October 27, 2025

“You and I”

One of my favorite time of years is coming up, NaNoWriMo. If you’ve been reading this trash blog for some time you will know I have done this event a few times in the past. The first time I participated, I wrote my first ever novel length work of fiction. The one I subsequently have edited the last 12 years of my life.

For this years assignment I decided that since it starts on Charlie’s and my wedding anniversary (as it does every year) I wanted to write about our life together. It was something I had come up with back in April when I had a TikTok go viral. It was a brief cut of our “Not There Yet…” video blogs along to the song “I love you, I’m sorry” by Gracie Abrams. (I’ll post it below.) It exploded more than I had ever thought possible. And it showed me that people cared. The comments are where it really thrived because I had people tell me their own sad stories or give their condolences. Of the hundreds of messages 98% of them were the beauty and kindness humanity is capable of offering.

This lit a fire in me.

I decided that I was going to write a book about our life together. I began brainstorming and came up with web outlines that really shaped the narrative of our life together. It gave me the perspective that there is something there TO share. It wouldn’t just be a random collection of events strung together with only the narrative thread that I would one day lose him. There was advice for polyamory, infidelity, growth, marriage, family, and eventual loss. And not to forget it would give my husband’s death even more meaning.

But like most of my good ideas, my enthusiasm fizzled out and I was consumed once again by the shroud of my depression. Which is fine. I’m grieving. At least, that’s what I keep telling myself.

To keep my idea alive I kicked it down the road and told myself to do it in November, when I have the chance to participate in the month long writing event. Also, around the same time period of when we started dating in 2003.

I had debated with myself if I wanted to keep it private or post each entry onto my webpage. What I have come to is: for the sake of uninhibited emotions I will write it for myself. Of course, with the intention that I will get it published because why would I write something if not for a reader to read it?

This morning, to get myself in the headspace to begin this month long journey, I put on an album Charlie had given me when we first dated, Jason Mraz’s “Waiting for my Rocket to Come.” It makes me think of him every time I listen to it, and of those early days. This little exercise sent me into a downpour of tears.

The first song on the album is “You and I.” In the past it never really stuck out, but today it did for the simple fact that out of all of the songs on the album (within my “genesis” playlist) this had it’s own album art. Every other track has the actual cover, where he’s sitting on a curb talking to a rooster.

As the song played on the lyrics popped. For the first time I really listened to the song, but within the context of doing this project. It felt like Charlie was talking to me, and that’s what brought about the tears.

(I would post the song for you to listen, but I am no longer using Spotify as they support ICE. And I am nothing if not a bleeding heart hippy liberal douche.)

As a result, where I had been unsure if I was really going to follow through, this gifted me the resolve to actually do it and not just say so. It was my husband prodding me from beyond the grave. Well… beyond the wood box that currently rests on my dresser, in which he resides. (I am cackling at my own joke. I hope you did too.)

@opinionatedandcrazy

My husband was diagnosed with ALS during 2020 and passed 4 years later. Even with a pandemic that didn’t stop us from doing road trips. #als #grief #loss

♬ som original – ᴀᴛʟᴀs
November 8, 2024

Were I With You…

Today my phone actually connected to my car without me having to take any extra steps. It turned on my ipod and put all my entire library on shuffle. For the most part the songs were skippable with clips of stand-up comedy sprinkled in between. But when this song came on I stopped and started to ugly cry.

My husband loved Chris Stapleton in the last few years of his life. When his newest album at the time came out, he sent me this song as a “message” from him to me. It was the best way he could express his emotions because he was not someone who could say what he felt. Instead, he did it through songs. Which is why, when he would forget the songs he “dedicated” to me it broke my heart a little. I know he meant nothing by it, it was just his bad memory. Plus, I have a tendency to remember the most innocuous bullshit.

I like to pretend that this isn’t just some random happenstance, but that its my husband speaking to me from the beyond. Most who have lost someone do this. It’s so hard to let go to the people who were so impactful on your existence. Even when you had 4 years to get used to the idea.

After the election I could really, really use my husband’s voice to talk me through it and let me know that everything will be okay. I wish I could snuggle up next to him, rest my head on his chest and listen to his heartbeat. He’d put an arm around my back and hook it onto my shoulder. He wasn’t one for physical intimacy, so I had to grab it when and where I could.

His heart was so loud in my ear. I liked to think it was because he had a larger than normal one, in the cutesy way and not in the “this is a medical condition” kind. It would be slightly tarnished because after he passed, that was how I knew he was gone. I placed my ear to his chest and I couldn’t hear it anymore. He was gone. He had left after I began to panic that he was in pain and rushed to the kitchen, with Tony, to get the medication to keep him relaxed.

I was so worried during the first Trump disaster than gay marriage would be repealed and I would lose our marriage. Luckily it didn’t happen. Instead he was diagnosed with a terminal illness and he was physically taken from me. Maybe having our marriage nullified would have been better… But he would have been diagnosed regardless. So I guess I should take the “win.”

It’s weird, how this song absolutely applies to me now. I’m entering into my 40th year of life. And there isn’t any pot of gold. Just a lake of shit and death.

The night of the election I genuinely thought about taking an entire bottle of pills. It was quickly dismissed by two things. One, was the promise I made to my husband before he died. He wanted me to keep living and have lots of adventures. With my word given… I would be more devastated by breaking it than dying. Two, I won’t give these fuckers the satisfaction. I’d rather stick around and annoy them. Kick them in the nuts if I get the chance. Maybe punch a couple of the nazis if I get the chance.

Only time will tell.

I just wish I had my best friend with me. The “Josh Whisperer.” He knew what to say and do to soothe the unruly beast that lives within my thoughts.

May 2, 2024

Memories and Missed Opportunities

Last night was strange…

I went to bed and in the midst of my mumbling thoughts I started to think about the most random of memories of my husband. Little things, like when I would kiss his neck or the way he would tap his glass as he would take a drink. Then in morphed into thinking of our final day together.

He woke up and was madly messaging all of the people he’s been corresponding with these past few months. Then when he finally got up we watched The Birdcage. For the life of me I can’t even remember what else we watched. I had wanted us to bookend everything with a re-watch of Philadelphia but from behind his mask he firmly said no.

Once it got close to time, we retired to the bedroom and set up chairs all around the bed. We watched an episode of Taskmaster until the nurse got there. She wrote out the instructions to administer the drugs and split. (Which was not the plan by the way, but that is a blog post for another time.)

At 5:30 we took off his mask and waited. Almost exactly 6 hours later he was gone.

I replayed this over and over last night… Thinking of him lying in bed afterwards, there but not. He looked so peaceful. I would go in there and check on him, brush his hair. I could hear his voice screaming in my head “Josh, that is so weird. That’s a dead body. Gross.”

These memories made me miss him so much. I started to cry but stopped myself because I didn’t want to wake up Tony.

Last night I dreamed of Charlie and I adopting a child. We were asking my parents questions about what we would need and they were excited to meet their grandchild. It was such a lovely dream that I didn’t want to wake up. I got to have my family back for a very brief moment of time.

Charlie had said one time that he would be willing to have kids if we adopted. At the time I didn’t want that, I’d rather have a biological child of my own, but I figured if he was willing to meet me halfway I should too. Shortly after his tune changed and he didn’t want kids. This would be the pattern over the course of our relationship, mostly because we had yet to find our groove. We didn’t know what made us work and how to accommodate our shortcomings. By the time we had figured them out and became a stronger couple, we were in the midst of having an open relationship and he wouldn’t want to bring a child into that. Which is a fair assessment.

Then he was diagnosed with ALS.

In hindsight I am glad we never brought children into our relationship. It would have made everything exceptionally difficult, especially once I had to raise them and take care of Charlie all while trying to process my and our child’s grief. Maddening.

I think Charlie would have been an amazing dad. He was so patient and kind. They also would have been fucking spoiled. I know it. Between him and my parents… the kid would have never wanted for anything.

The thought of adopting now just breaks my heart. They would never get to know one of the greatest people of my life. Charlie would be some myth or legend, yet the reality would be so much more.

I’m glad I at least got to feel it in a dream.

April 8, 2024

April 12th

It’s strange. One would think that at the start of the worst week of my life I would have something to say. Something to impart on how I am feeling… But I have nothing. Genuinely nothing. I feel numb. As if I have hit pause on my entire body. I imagine if I were to pursue some answer it would say that it is some sort of trauma safety response… However I don’t have the time or the energy to do it. And in the end… what would this answer serve?

For some context, this Friday (April 12th) my husband will go to bed without his breathing mask. It is this mask that has kept him around as long as he has, and without it he will most likely pass way in his sleep. We have spoken with his hospice nurses and they will be there to help keep him comfortable as he “transitions” into the next stage of his existence.

I have known that this day was coming since he was diagnosed with ALS. It’s not like that this was sprung upon me out of the blue. I knew. I have known. It’s just weird to know the exact day. Prior to this I would wake up every morning and see if he was still here, or whenever he took a nap. I have been convinced for sometime that he would go while we slept. Primarily because that was what the doctors had told us was most likely to occur, and even before he had been diagnosed I would wake up in a panic throughout the night and see if he was still breathing. It’s weird. It was as if I knew.

All I want to do is open up my heart and pour out all I feel… I am craving some semblance of vulnerability but I have none. Is this shock? Maybe it is denial, until I am there to see and feel the reality.

For so long I have lived with the “not there yet” attitude. It was the title to our weird little video blogs we would do on our trips. It was literally the words I would say to myself in the early days of diagnosis, when my mind would spiral into all of the gory/overwhelming possibilities. To calm myself I would repeat “we’re not there yet” so I could focus on where we were in all of this. Well… we’re here.

The thing that is keeping me together is what Charlie said the other day, when I asked how he was feeling: I’m excited to see what happens next.